Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 Suhad so sorry to hear about Leanna. You are in our thoughts and prayers. I know it is hard, but you have to believe she'll pull through. She needs your strength. rosy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 Suhad, My prayers are with Leanna and your whole family. I hope she is feeling better and home safe and sound very soon, Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 Dear Suhad: I’ll keep praying! Thanks for taking the time to update us! Cindy Cruz -----Original Message----- From: suhad1970@... Sent: Wednesday, March 09, 2005 9:48 PM To: Mito Subject: LEANNA update To everyone, Leanna got admitted to the hospital today because she is having trouble swallowing and has no appetite and very tired. I hope to God that she pulls through this . I know many of you are praying and I wanted to update.I juts came home and her dad is spending the night there with her. I am scared to death. She has never been this bad. Please keep praying. We are losing way too many children to this disease. I HATE MITO> IT IS SO EVIlL. Suhad Haddad -- Mom to Samya (Died 12-10-02 of Leigh's Synd.) & Leanna with same disease. Samya's Memorial Site: www.samyahaddad.com/.org/.net Email: Suhad1970@... Alt Email: Suhad@... AiM Chat: Suhad1970 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 We are praying for Leanna to recover quickly, and for God to give you and your husband the strength you need to get through this with her. The Rubio Family LEANNA update To everyone, Leanna got admitted to the hospital today because she is having trouble swallowing and has no appetite and very tired. I hope to God that she pulls through this . I know many of you are praying and I wanted to update.I juts came home and her dad is spending the night there with her. I am scared to death. She has never been this bad. Please keep praying. We are losing way too many children to this disease. I HATE MITO> IT IS SO EVIlL. Suhad Haddad -- Mom to Samya (Died 12-10-02 of Leigh's Synd.) & Leanna with same disease. Samya's Memorial Site: www.samyahaddad.com/.org/.net Email: Suhad1970@... Alt Email: Suhad@... AiM Chat: Suhad1970 Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 We are praying that Leanna will pull through this. Geri-Anne and Wyatt, Complex I > To everyone, > > Leanna got admitted to the hospital today because she is having trouble > swallowing and has no appetite and very tired. I hope to God that she pulls > through this . I know many of you are praying and I wanted to update.I juts > came home and her dad is spending the night there with her. I am scared to > death. She has never been this bad. Please keep praying. We are losing way > too many children to this disease. I HATE MITO> IT IS SO EVIlL. > > > > > > > > Suhad Haddad -- Mom to Samya (Died 12-10-02 of Leigh's Synd.) & Leanna > with same disease. > > Samya's Memorial Site: www.samyahaddad.com/.org/.net > > Email: Suhad1970@s... > > Alt Email: Suhad@S... > > AiM Chat: Suhad1970 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 Dear Suhad, I am truly sorry that you are going through this with yet another child. I would love for there to be something other than words that I could do for you right now. Please continue to keep us updated as we will continue to uplift your family in prayer. Jonisuhad1970@... wrote: To everyone, Leanna got admitted to the hospital today because she is having trouble swallowing and has no appetite and very tired. I hope to God that she pulls through this . I know many of you are praying and I wanted to update.I juts came home and her dad is spending the night there with her. I am scared to death. She has never been this bad. Please keep praying. We are losing way too many children to this disease. I HATE MITO> IT IS SO EVIlL. Suhad Haddad -- Mom to Samya (Died 12-10-02 of Leigh's Synd.) & Leanna with same disease. Samya's Memorial Site: www.samyahaddad.com/.org/.net Email: Suhad1970@... Alt Email: Suhad@... AiM Chat: Suhad1970 Please contact mito-owner with any problems or questions. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 I will continue to think of you all and say a prayer or two or three...well you get the picture. I'm glad you admitted her to the hospital to be under a watchful eye. Sounds like you and your husband have things worked out where at least one of you is with her. Do you ever both sleep in the hospital with her or just one of you? Just curious. May God's blessing be upon you and guide you during this illness and that she come through well. Keep the strength going. LIsa Nerenhausen mom to Leah > We continue to pray for Leanna. > > Kim - Mom to and Lindsey > LEANNA update > > > To everyone, > > Leanna got admitted to the hospital today because she is having trouble swallowing and has no appetite and very tired. I hope to God that she pulls through this . I know many of you are praying and I wanted to update.I juts came home and her dad is spending the night there with her. I am scared to death. She has never been this bad. Please keep praying. We are losing way too many children to this disease. I HATE MITO> IT IS SO EVIlL. > > > > > > > > Suhad Haddad -- Mom to Samya (Died 12-10-02 of Leigh's Synd.) & Leanna with same disease. > > Samya's Memorial Site: www.samyahaddad.com/.org/.net > > Email: Suhad1970@... > > Alt Email: Suhad@... > > AiM Chat: Suhad1970 > > > > > > Please contact mito-owner with any problems or questions. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 To everyone, Thank you all for your well wishes and prayers. I am at home while my husband spends the night with leanna. She is not doing well at all. Very weak very quickly and no appetite. She got a nG tube today to add calories. I am beyond tired physically and mentally and I do not know how I can deal with this. I just listened to her adorable messag on our answering machine where she is giggling and I do not know if I will ever hear her be so funny again. Have any of your kids ever been this bad and actually made a turnaround. She cannot hold her head, hardly talks, losing bladder control, ptosis but has not started the labored breathing yet that got Samya intubated. We are conisidering NOT considering intubation and making her suffer like Samya did. TOUGH DECISIONS GOD help us. I need to go lay in my bed and get ZERO sleep again and see how long until my body gives out. God bless you all and God give us all strength for all we endure. Only you guys can even imagine how tired I am now. Suhad Haddad -- Mom to Samya (Died 12-10-02 of Leigh's Synd.) & Leanna with same disease. Samya's Memorial Site: www.samyahaddad.com/.org/.net Email: Suhad1970@... Alt Email: Suhad@... AiM Chat: Suhad1970 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 Dear Suhad, My heart is breaking for you and your husband and Leanna. I pray that you will have peace in the decisions you make. I pray that you have unexpected peace tonight so that you can sleep. We have had terrifying experiences with both of our boys where I didn’t think they would make it, but it was different than your experience with Leanna. Hugs and lots of prayers, Cindy (mom to Seth and Ben, both with mito) -----Original Message----- From: suhad1970@... Sent: Thursday, March 10, 2005 10:15 PM To: Mito Subject: LEANNA update To everyone, Thank you all for your well wishes and prayers. I am at home while my husband spends the night with leanna. She is not doing well at all. Very weak very quickly and no appetite. She got a nG tube today to add calories. I am beyond tired physically and mentally and I do not know how I can deal with this. I just listened to her adorable messag on our answering machine where she is giggling and I do not know if I will ever hear her be so funny again. Have any of your kids ever been this bad and actually made a turnaround. She cannot hold her head, hardly talks, losing bladder control, ptosis but has not started the labored breathing yet that got Samya intubated. We are conisidering NOT considering intubation and making her suffer like Samya did. TOUGH DECISIONS GOD help us. I need to go lay in my bed and get ZERO sleep again and see how long until my body gives out. God bless you all and God give us all strength for all we endure. Only you guys can even imagine how tired I am now. Suhad Haddad -- Mom to Samya (Died 12-10-02 of Leigh's Synd.) & Leanna with same disease. Samya's Memorial Site: www.samyahaddad.com/.org/.net Email: Suhad1970@... Alt Email: Suhad@... AiM Chat: Suhad1970 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 Suhad, I am praying for your daughter. I know you must be very afraid right now and just want to encourage you to really turn to God right now for your strength and peace. I will pray for a quick change in her health with renewed strength and energy and for healing. I too hate this disease and all it does to our children. And when more kids seem to be struggling or we lose one it becomes even harder to swallow. Make sure you get plenty of rest. I am glad you are able to take a break when your hubby is with her. Keep us posted so we can better pray for her and you. See www.caringbridge.org/ia/mitomomof9 and www.heartbeatsformito.org to see a photo look into what Mito looks like Darla: mommy to Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube, hypotonicity, disautonomy, SID, global delays, asthma, cyclic vomiting, bladder issues, wheelchair for distances, eye issues, autistic behaviors, gastric emptying issues... Zipporrah (14 months) Mito, strokes, neuro-motor planning dys., SID, GERD, dysphasia, 100% G-tube fed, speech delays, extreme fatigue, excessive phlegm, asthma, trach issues, aberrant subclavian artery, disautonomy, hypertonicity, migraines, possible seizures, dumping syndrome, iron deficiency, ... Luke (16), Leah (14), Rachael (13), Isaac (10), Tirzah (8), Kezia (4), & Marquis (3), Joey & (12 months) (some with Mito symptoms) LEANNA update > To everyone, > > Leanna got admitted to the hospital today because she is having trouble > swallowing and has no appetite and very tired. I hope to God that she > pulls > through this . I know many of you are praying and I wanted to update.I > juts > came home and her dad is spending the night there with her. I am scared to > death. She has never been this bad. Please keep praying. We are losing way > too many children to this disease. I HATE MITO> IT IS SO EVIlL. > > > > > > > > Suhad Haddad -- Mom to Samya (Died 12-10-02 of Leigh's Synd.) & Leanna > with same disease. > > Samya's Memorial Site: www.samyahaddad.com/.org/.net > > Email: Suhad1970@... > > Alt Email: Suhad@... > > AiM Chat: Suhad1970 > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2005 Report Share Posted March 12, 2005 Is that what the doctors are saying and if so what is she dealing with at this point? We will be sending fervent prayers heavenward for her, Suhad. Wish I could be there to wrap my arms around you. If you need an ear, write my personal e-mail address with your phone number. honeybear50317@... See www.caringbridge.org/ia/mitomomof9 and www.heartbeatsformito.org to see a photo look into what Mito looks like Darla: mommy to Asenath (5) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube, hypotonicity, disautonomia, SID, global delays, asthma, cyclic vomiting, bladder issues, wheelchair for distances, eye issues, autistic behaviors, gastric emptying issues... Zipporrah (17 months) Mito, strokes, neuro-motor planning dys., SID, GERD, dysphasia, 100% G-tube fed, speech delays, extreme fatigue, excessive phlegm, asthma, trach issues, aberrant subclavian artery, disautonomia, hypertonicity, migraines, possible seizures, dumping syndrome, iron deficiency... Luke (16)migraines, sensory issues, & some evidence of SLE's... Leah (14), Rachael (13), Isaac (11), Tirzah (8), Kezia (4), Marquis (3) prenatal drug & alcohol exposure with likely FAS, behavioral issues, SID... Joey (15 months) with hydrocephalus, dysgenesis of the corpus callosum, encephalomalacia & leukomalacia, possible arachnoid cyst, LEANNA UPDATE > Leanna is dying and it has been one week. I have no words. Thank you all > for > your support. I love you all. She is hanging on to dear life. > > Love, > > > > > > > > Suhad Haddad -- Mom to Samya (Died 12-10-02 of Leigh's Synd.) & Leanna > with same disease. > > Samya's Memorial Site: www.samyahaddad.com/.org/.net > > Email: Suhad1970@... > > Alt Email: Suhad@... > > AiM Chat: Suhad1970 > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2005 Report Share Posted March 12, 2005 I am so sorry for your daughter's suffering with this terrible disease. I have not been keeping up very much lately but was wondering, what happened to make her go downhill so rapidly? I will keep your family lifted up in prayers daily please take comfort in knowing that...it's the least I could do. Debbie -- LEANNA UPDATE Leanna is dying and it has been one week. I have no words. Thank you all for your support. I love you all. She is hanging on to dear life. Love, Suhad Haddad -- Mom to Samya (Died 12-10-02 of Leigh's Synd.) & Leanna with same disease. Samya's Memorial Site: www.samyahaddad.com/.org/.net Email: Suhad1970@... Alt Email: Suhad@... AiM Chat: Suhad1970 Please contact mito-owner with any problems or questions. No virus found in this outgoing message. Checked by AVG Anti-Virus. Version: 7.0.300 / Virus Database: 266.7.0 - Release Date: 3/8/2005 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2005 Report Share Posted March 13, 2005 Suhad, I have no words, but many, many prayers for you and your family. Hold her tight and let her know you love her so very much. If she is to be with Samya soon, be comforted by knowing they will be playing together and waiting for you to join them. My heart is breaking for you... KK LEANNA UPDATE Leanna is dying and it has been one week. I have no words. Thank you all for your support. I love you all. She is hanging on to dear life. Love, Suhad Haddad -- Mom to Samya (Died 12-10-02 of Leigh's Synd.) & Leanna with same disease. Samya's Memorial Site: www.samyahaddad.com/.org/.net Email: Suhad1970@... Alt Email: Suhad@... AiM Chat: Suhad1970 Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2005 Report Share Posted March 13, 2005 Suhad, I feel so bad for your family. I'm so sorry to hear that Leanna is not getting better. I can't imagine what you are going through right now. She got so sick so suddenly! Leanna is dying and it has been one week. I have no words. Thank you all for your support. I love you all. She is hanging on to dear life. Love, Suhad Haddad -- Mom to Samya (Died 12-10-02 of Leigh's Synd.) & Leanna with same disease. Samya's Memorial Site: www.samyahaddad.com/.org/.net Email: Suhad1970@... Alt Email: Suhad@... AiM Chat: Suhad1970 Please contact mito-owner with any problems or questions. Yahoo! Groups Sponsor ADVERTISEMENT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2005 Report Share Posted March 13, 2005 We are praying for Leanna and for you. Beth http://hometown.aol.com/marybethlefevre/index.html > Leanna is dying and it has been one week. I have no words. Thank you all for > your support. I love you all. She is hanging on to dear life. > > Love, > > > > > > > > Suhad Haddad -- Mom to Samya (Died 12-10-02 of Leigh's Synd.) & Leanna > with same disease. > > Samya's Memorial Site: www.samyahaddad.com/.org/.net > > Email: Suhad1970@s... > > Alt Email: Suhad@S... > > AiM Chat: Suhad1970 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2005 Report Share Posted March 13, 2005 Suhad, I am so sorry. You have gone through so much already. You have been a wonderful support to everyone here. Know that we are here for you. We are saying prayers for you, your husband and Leanna. Geri-Anne and Wyatt, Complex I > Leanna is dying and it has been one week. I have no words. Thank you all for > your support. I love you all. She is hanging on to dear life. > > Love, > > > > > > > > Suhad Haddad -- Mom to Samya (Died 12-10-02 of Leigh's Synd.) & Leanna > with same disease. > > Samya's Memorial Site: www.samyahaddad.com/.org/.net > > Email: Suhad1970@s... > > Alt Email: Suhad@S... > > AiM Chat: Suhad1970 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2005 Report Share Posted March 13, 2005 Suhad- My heart aches for you. We have been praying for Leanna- praying for your family. Praying that you all can find some sense of peace. I cried for you today, and I am still in disbelief that this is happening. We will continue to pray for strength for all of you. Holly Rubio LEANNA UPDATE Leanna is dying and it has been one week. I have no words. Thank you all for your support. I love you all. She is hanging on to dear life. Love, Suhad Haddad -- Mom to Samya (Died 12-10-02 of Leigh's Synd.) & Leanna with same disease. Samya's Memorial Site: www.samyahaddad.com/.org/.net Email: Suhad1970@... Alt Email: Suhad@... AiM Chat: Suhad1970 Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2005 Report Share Posted March 13, 2005 Suhad, there are no words I can say to ease the pain, I will pray for Leanna and you and your husband for strength and peace. This is so unfair. Lois LEANNA UPDATE Leanna is dying and it has been one week. I have no words. Thank you all for your support. I love you all. She is hanging on to dear life. Love, Suhad Haddad -- Mom to Samya (Died 12-10-02 of Leigh's Synd.) & Leanna with same disease. Samya's Memorial Site: www.samyahaddad.com/.org/.net Email: Suhad1970@... Alt Email: Suhad@... AiM Chat: Suhad1970 Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
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