Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 i wonder how everybody would feel, if we sent short notes of support to the individual's direct e mail, rather than the group and save posts to the group for advice and past expieriences with medical matters, this would save going through a lot of e mails every day how does everyone feel about this? I see where you are coming from but I think its important (especially for the newbies) to know the support is out there if they need it. I often delete posts...I usually read the first post and if its not a topic that interests me, I delete the responses...its easy and just takes a sec...so that would be my suggestion...but that's just my opinion... deb...mom to four great kids and wife to one amazing guy!www.LifeofLoveProject.orgwww.debwells.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 please do not shoot me! i wonder how everybody would feel, if we sent short notes of support to the individual's direct e mail, rather than the group and save posts to the group for advice and past expieriences with medical matters, this would save going through a lot of e mails every day how does everyone feel about this? martin thefourofus03 wrote: Suhad,My prayers are with Leanna and your whole family. I hope she is feeling better and home safe and sound very soon, Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 I agree that as much as I look to this group for medical knowledge and insight, I look to it for support. I think that is what a support group is about. I would hate to think that we miss viewing each others kind words to each other when they are needed and asked for especially when some have little or no support elsewhere. Where would you draw that line? Birthdays? Holidays? Hospitalizations? Deaths? I would not obviously agree with the change but understand the suggestion.Just My two cents too, Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 I think I'm in agreement with the others on this topic. Not only do I turn to this group for their experience and medical knowledge, I turn to them for support as well. The prayers and well wishes from this group are inspiring and very powerful, and we share a bond that is much more intimate than just sharing of information. I've come to know many of these families so well over the last 3 years, and I rejoice when even the smallest things are accomplished (nothing is too small an accomplishment for our kiddo's) and I pray when there is a crisis (and I pray when things are going well!) and I grieve when there is a loss. I may not get to post as often as I'd like, but you are all constantly on my mind, and in my heart. I check the board frequently throughout the day, just to see how everyone is doing, and if there are any updates. I don't know anyone here in NM who has a child even remotely similar to my Maddie, and being in contact with everyone on such a personal basis really makes me feel as though we aren't alone. Holly Rubio a suggestion please do not shoot me! i wonder how everybody would feel, if we sent short notes of support to the individual's direct e mail, rather than the group and save posts to the group for advice and past expieriences with medical matters, this would save going through a lot of e mails every day how does everyone feel about this? martin thefourofus03 wrote: Suhad,My prayers are with Leanna and your whole family. I hope she is feeling better and home safe and sound very soon, Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 I would have to agree with Deb. Just delete the ones that are not of interest to you. Kathy, grandma to Audrey,3 yearsVisibleWorship@... wrote: i wonder how everybody would feel, if we sent short notes of support to the individual's direct e mail, rather than the group and save posts to the group for advice and past expieriences with medical matters, this would save going through a lot of e mails every day how does everyone feel about this? I see where you are coming from but I think its important (especially for the newbies) to know the support is out there if they need it. I often delete posts...I usually read the first post and if its not a topic that interests me, I delete the responses...its easy and just takes a sec...so that would be my suggestion...but that's just my opinion... deb...mom to four great kids and wife to one amazing guy!www.LifeofLoveProject.orgwww.debwells.comPlease contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 For some people, this may be their only place for support as family/friends may not understand what having a mito child is like. I pray for everyone who posts, but I do not have to read every response to their original post. If it is easier for you, you can just come to the board, rather than read the whole list in your email. Just my thoughts, but I think this is a more personal forum for the very reason that people post the trials and tribulations of life with mito. Beth > > > Suhad, > > My prayers are with Leanna and your whole family. I hope she is > feeling better and home safe and sound very soon, Dawn > > > > > > > Please contact mito-owner with any problems or questions. > Quote Link to comment Share on other sites More sharing options...
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