Crisis with no sign of cold, virus or infection causing it...

[Guest guest]

Hi guys!

Well, I have a question for all of you.

It looks like Abigail is on her way to another hospital visit.

Yesterday she slept the entire day after sleep 12 hours the night

before. Prior to that she had been falling a lot for 5 days. She is

better today however she is not eating well, and she is having a

really hard time getting up and down the stairs. She slways has a

hard time, but right now it is really difficult for her. She is also

laying around and watching tv. Not Abigail's style.

So now for my question...Raise your hand if your child goes into

these tail spins without a virus or cold in sight. No temp, no runny

nose, no sore throat. Not even so much as a sneeze!!!

A while back they desided not to do Abigail's blood work bi weekly

anymore. She frankly would be in the hospital every other week if

they did.

She always has high CK levels and myoglobin in her urine. I have put

a call into her doctor. You know...the one where the nurse knows who

I am by the sound of my voice and tells me she will have the doctor

call me bask ASAP.

Abigail only went into crisis when she was ill with a cold, virus or

infection. Now it seems to happen for no reason at all. It isn't

fair, I can't even see it coming anymore.

Thx for listening...I have probibly said it all before.

Myst