Guest guest Posted June 24, 2008 Report Share Posted June 24, 2008 Hey Guys Just dropped in to say hello to everyone. I haven't had much to say lately but I have been reading the posts. I have been having the cytoxan infusions (2) and they seemed to help a great deal but if isn't coming out one end is comes out the other. Only lasts a couple of days but it still sucks. In the middle of everything I got some great news. I am going to be a Grandma. My son, and his wife Angie, are expecting. They told me on my 46th Birthday. I am so excited. It has been a long time since I have had something to look forward to. I say Happy Birthday to all of those that I have missed; I have laughed and cried with all of you. I have prayed for all of you and will check on you regularly. Terri G. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2008 Report Share Posted June 24, 2008 Congratulations on the great news of becoming a Grandma, it's always nice to have something to look forward to.I'm glad you are feeling better, sorry the medication is so hard on you. I'm getting infusion #2 of Remicade tomorrow I don't have any side effects, except, and this is crazy will have to ask Tracie, I have been horse(not sure correct spelling) with my voice ever since the first infusion, strange, and everyone asks me if I have a cold. Thanks for checking in, good to hear how everyone is doing, it has been so quiet lately, just hope it's because everyone is busy with summer. Blessings to all, Marla Hey Guys Just dropped in to say hello to everyone. I haven't had much to say lately but I have been reading the posts. I have been having the cytoxan infusions (2) and they seemed to help a great deal but if isn't coming out one end is comes out the other. Only lasts a couple of days but it still sucks. In the middle of everything I got some great news. I am going to be a Grandma. My son, and his wife Angie, are expecting. They told me on my 46th Birthday. I am so excited. It has been a long time since I have had something to look forward to. I say Happy Birthday to all of those that I have missed; I have laughed and cried with all of you. I have prayed for all of you and will check on you regularly. Terri G. -- Marla Bramer Independent Beauty Consultant Kaymbramer@... www.marykay.com 'I know the plans I have for you, declared the Lord, 'plans to prosper you and not to harm you; Plans to give you a future and a hope Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2008 Report Share Posted June 25, 2008 Congratulations Terri!!!! You go, gramma! Bonnie BGas prices getting you down? Search AOL Autos for fuel-efficient used cars. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2008 Report Share Posted June 25, 2008 Just checking in with you Marla to see how things went with your infusion today. Hope you are still feeling well. It was strange that you mentioned the hoarseness in your voice. Minw started once my facial palsy started in December, and has never went away. I sound like a man..lol. Every time I talk to someone on the phone, they always think I am sick, tired, sleeping, or just woke up, and I could be just in the middle of cleaning..so I am not sure what mine is from either. Hope you're feeling well. Prayers are with you. Christy Hey GuysJust dropped in to say hello to everyone. I haven't had much to saylately but I have been reading the posts. I have been having thecytoxan infusions (2) and they seemed to help a great deal but if isn'tcoming out one end is comes out the other. Only lasts a couple of daysbut it still sucks.In the middle of everything I got some great news. I am going to be aGrandma. My son, and his wife Angie, are expecting. They told meon my 46th Birthday. I am so excited. It has been a long time since Ihave had something to look forward to.I say Happy Birthday to all of those that I have missed; I have laughedand cried with all of you. I have prayed for all of you and will checkon you regularly.Terri G.-- Marla Bramer Independent Beauty Consultant Kaymbramer (AT) marykay (DOT) com www.marykay. com 'I know the plans I have for you, declared the Lord, 'plans to prosper you and not to harm you; Plans to give you a future and a hope Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2008 Report Share Posted June 25, 2008 Terri, I'm sorry you are not feeling well. But, like you said, you have something to look forward to now...being a Nana! Congrats. Hopefully the doctors can (or have given you) something to help your N/V and D. Prayers are with you, too. Christy Subject: helloTo: Neurosarcoidosis Date: Tuesday, June 24, 2008, 9:21 PM Hey GuysJust dropped in to say hello to everyone. I haven't had much to saylately but I have been reading the posts. I have been having thecytoxan infusions (2) and they seemed to help a great deal but if isn'tcoming out one end is comes out the other. Only lasts a couple of daysbut it still sucks.In the middle of everything I got some great news. I am going to be aGrandma. My son, and his wife Angie, are expecting. They told meon my 46th Birthday. I am so excited. It has been a long time since Ihave had something to look forward to.I say Happy Birthday to all of those that I have missed; I have laughedand cried with all of you. I have prayed for all of you and will checkon you regularly.Terri G. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2008 Report Share Posted June 25, 2008 Marla, What a strange reaction. I am glad you are getting the remicade though. I am feeling a lot better today so it is easy to forget what it is like now. Take care and let the medication do its work. Be sure to let someone know about the hoarseness. Terri G. > > > > > Hey Guys > > > > Just dropped in to say hello to everyone. I haven't had much to say > > lately but I have been reading the posts. I have been having the > > cytoxan infusions (2) and they seemed to help a great deal but if isn't > > coming out one end is comes out the other. Only lasts a couple of days > > but it still sucks. > > > > In the middle of everything I got some great news. I am going to be a > > Grandma. My son, and his wife Angie, are expecting. They told me > > on my 46th Birthday. I am so excited. It has been a long time since I > > have had something to look forward to. > > > > I say Happy Birthday to all of those that I have missed; I have laughed > > and cried with all of you. I have prayed for all of you and will check > > on you regularly. > > > > Terri G. > > > > > > > > > > -- > Marla Bramer > Independent Beauty Consultant > Kay > > mbramer@... > www.marykay.com > 'I know the plans I have for you, declared the Lord, 'plans to prosper you > and not to harm you; Plans to give you a future and a hope > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2008 Report Share Posted June 25, 2008 Christy, Thanks for the sweet note. I do have something for the n/v but the more I suppress it, the worse the diarrhea is. Go figure. I am a week out and feel so much better. Hope you are well and I am looking forward to the baby. Thanks again. Terri G. > > From: mosaicgirl1 mosaicgirl1@... > Subject: hello > To: Neurosarcoidosis > Date: Tuesday, June 24, 2008, 9:21 PM > > > > > > > > Hey Guys > > Just dropped in to say hello to everyone. I haven't had much to say > lately but I have been reading the posts. I have been having the > cytoxan infusions (2) and they seemed to help a great deal but if isn't > coming out one end is comes out the other. Only lasts a couple of days > but it still sucks. > > In the middle of everything I got some great news. I am going to be a > Grandma. My son, and his wife Angie, are expecting. They told me > on my 46th Birthday. I am so excited. It has been a long time since I > have had something to look forward to. > > I say Happy Birthday to all of those that I have missed; I have laughed > and cried with all of you. I have prayed for all of you and will check > on you regularly. > > Terri G. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2008 Report Share Posted June 25, 2008 , I, too, get hoarseness with the bell's palsy and trigeminal neuralgia. I have it when I amat my worst and have had it last 2-3 months at a time. Once the flare passes, it goes away. Just an FYI. Terri G. > > > > > > > > Hey Guys > > Just dropped in to say hello to everyone. I haven't had much to say > lately but I have been reading the posts. I have been having the > cytoxan infusions (2) and they seemed to help a great deal but if isn't > coming out one end is comes out the other. Only lasts a couple of days > but it still sucks. > > In the middle of everything I got some great news. I am going to be a > Grandma. My son, and his wife Angie, are expecting. They told me > on my 46th Birthday. I am so excited. It has been a long time since I > have had something to look forward to. > > I say Happy Birthday to all of those that I have missed; I have laughed > and cried with all of you. I have prayed for all of you and will check > on you regularly. > > Terri G. > > > > > -- > Marla Bramer > Independent Beauty Consultant > Kay > > mbramer (AT) marykay (DOT) com > www.marykay. com > 'I know the plans I have for you, declared the Lord, 'plans to prosper you and not to harm you; Plans to give you a future and a hope > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2008 Report Share Posted June 25, 2008 Bonnie, Thank you so much. I am so excited and trying to keep my nose out unless they want my advice. I was an OB/Gyn medical assistant and I want to just take over!!!! But I have been good which is kind of hard for me. Take care and thanks for the note. Take care of yourself. Terri G. > > Congratulations Terri!!!! You go, gramma! Bonnie B > > > > **************Gas prices getting you down? Search AOL Autos for > fuel-efficient used cars. (http://autos.aol.com/used?ncid=aolaut00050000000007) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2008 Report Share Posted June 25, 2008 Terri, Thanks for the FYI. I hope it passes. I can't even talk on the phone longer than 5-7 minutes before my voice totally cracks up. I was wondering, I have also been getting these VERY painful sores on my tongue. It's only been since this whole thing started, and they come and go. they come about every 3 weeks and last for about a week. It is one sore on each side of my tongue. Last time they came, they came as little "holes" in my tongue...one on each side. But this time as usual, its sores that stick out. its hard to explain, but it hurts to talk, to eat, to do anything because it rubs on them. and they are white on top of them...like a white layer of skin on top. i dont know, it sounds really funky, and im sorry. but im trying to be as descriptive as possible to see if anybody else knows what it is. my doctor has no clue (of course). he just keeps putting me on an anti- herpes,(which i do not have) and it never works. he put me on acyclovir (sp?) doesnt work. could somebody maybe help me? Christy Subject: Re: helloTo: Neurosarcoidosis Date: Wednesday, June 25, 2008, 8:04 PM ,I, too, get hoarseness with the bell's palsy and trigeminal neuralgia. I have it when I amat my worst and have had it last 2-3 months at atime. Once the flare passes, it goes away.Just an FYI.Terri G.>>>>>>>> Hey Guys>> Just dropped in to say hello to everyone. I haven't had much to say> lately but I have been reading the posts. I have been having the> cytoxan infusions (2) and they seemed to help a great deal but ifisn't> coming out one end is comes out the other. Only lasts a couple of days> but it still sucks.>> In the middle of everything I got some great news. I am going to be a> Grandma. My son, and his wife Angie, are expecting. They told me> on my 46th Birthday. I am so excited. It has been a long time since I> have had something to look forward to.>> I say Happy Birthday to all of those that I have missed; I havelaughed> and cried with all of you. I have prayed for all of you and will check> on you regularly.>> Terri G.>>>>> --> Marla Bramer> Independent Beauty Consultant> Kay> > mbramer (AT) marykay (DOT) com> www.marykay. com> 'I know the plans I have for you, declared the Lord, 'plans to prosperyou and not to harm you; Plans to give you a future and a hope> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2008 Report Share Posted June 26, 2008 Christi, It does sound like shingles-- but you say the aclivor isn't helping. So that leaves a really bad thrush infection. There is some stuff called Miracle Mouthwash (by prescription)--- and it numbs the throat and tongue and gets rid of the yeast. The other is to use liquid acidophyllus and take a tsp several times a day. Drink some extra water-- get away from the fruit juices, sweets for a few days-- and use the Biotene products to get your mouth fauna back into sync. Hope this helps, Tracie Re: helloTo: Neurosarcoidosis Date: Wednesday, June 25, 2008, 8:04 PM ,I, too, get hoarseness with the bell's palsy and trigeminal neuralgia. I have it when I amat my worst and have had it last 2-3 months at atime. Once the flare passes, it goes away.Just an FYI.Terri G.>>>>>>>> Hey Guys>> Just dropped in to say hello to everyone. I haven't had much to say> lately but I have been reading the posts. I have been having the> cytoxan infusions (2) and they seemed to help a great deal but ifisn't> coming out one end is comes out the other. Only lasts a couple of days> but it still sucks.>> In the middle of everything I got some great news. I am going to be a> Grandma. My son, and his wife Angie, are expecting. They told me> on my 46th Birthday. I am so excited. It has been a long time since I> have had something to look forward to.>> I say Happy Birthday to all of those that I have missed; I havelaughed> and cried with all of you. I have prayed for all of you and will check> on you regularly.>> Terri G.>>>>> --> Marla Bramer> Independent Beauty Consultant> Kay> > mbramer (AT) marykay (DOT) com> www.marykay. com> 'I know the plans I have for you, declared the Lord, 'plans to prosperyou and not to harm you; Plans to give you a future and a hope> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2008 Report Share Posted August 21, 2008 Hi Terri Enjoy yourself while you are feeling good! I am glad things are going well. Don't worry about us, you will always have us to talk to... Debbie Subject: helloTo: Neurosarcoidosis Date: Wednesday, August 20, 2008, 8:15 AM Good Morning Everyone!I guess you have noticed I have not posted much at all this summer; Ihave been lurking quite a bit because I love all of you so much and youhave been so good to me. I have been feeling guitly because the cytoxanhas been such as successful treatment for me and I know how tough it isfor everyone.I just wanted all of you to know I think so much of you guys all thetime.Terri G. Quote Link to comment Share on other sites More sharing options...
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