Help

May 16, 2001

There are so many questions in the early days about which products to

use. I found it helpful to go to www.gfcfdiet.com and scroll through

the acceptable list. I picked out a few staple items that I thought

would be easy to find and stuck with them initially. After getting

the diet down pat, I started adding other brands and foods and

reducing the load of artifical colors & flavors.

On the acceptable list, you will find several gfcf brands for the

items you listed. As I recall, most are readily available at a

supermarket. For insect repellent, we like Burt's Bees as we are

avoiding DEET these days.

> I just started my son on the Gluten free part.... >

> Please give me names of sunscreesn, bug repelliant, Shampoo and any

other personal care items that I can use. This would appreciated.

>

> Thank you for all the help and for the much anticpated advice.

>

> Kim

May 16, 2001

Just an FYI, but our neuroligist told us the first symptom of too much

magnesium is loose stools, your loose stools could certainly be yeast, but

there is just one more question I have for you, what do they look like, I

only ask because I work in healthcare and a very sweet smelling, seedy

mustard colored stool is almost always a sign of a c-diff infection, easily

treated with flagyl{ perscription} dont know about gf/cf on that med though.

F

Help

> I just started my son on the Gluten free part. He has been getting

diarhea every morning. It is sweet smelling. Could this be Yeast? I am

also giving him B6 and Magnuesium. Could the diarhea be from too much

vitamins? What should I do? Is this part of withdrawl? He is going nuts

trying to get me to get him suckers from the pantry?

>

> Please give me names of sunscreesn, bug repelliant, Shampoo and any other

personal care items that I can use. This would appreciated.

>

> Thank you for all the help and for the much anticpated advice.

>

> Kim

>

May 16, 2001

Hi Kim,

I use Banana Boat sunscreen for kids or Kay sunscreen,

& Baby shampoo, any Arm & Hammer toothpaste or Toms of Maine

toothpaste or any Pepsodent toothpaste. Dial liquid antibacterial

hand soap (gold) is safe...I also use this for bubble bath. I don't

know about the bug repellant because I don't use it. These are the

brands I use, but there are several other acceptable brands listed

on the gfcfdiet website www.gfcfdiet.com

They have lots of valuable information including names of additives

that contain gluten. Gluten is the hardest to avoid because it is in almost

everything.

I hope I have been able to help you. I hope you see great results

on the diet, however, I beleive you will see even better results

when you remove the casein as well. Good luck!

Debbie

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July 2, 2001

It is so hard when you first find out the diagnosis and you see your

kid changing right before your eyes. Nothing can happen fast enough.

Plus it sounds like your school may be out of compliance. I don't

know what state you are in and what would be best advise for you.

You might want to consider writing a certified letter to the school

district documenting the delay services. It would be good if you can

document dates and people you spoke with. I would send this letter

to the school itself, teacher and principal, and Superintendent of

the school district. In addition, if you really want to rock their

boat you can send it to your state district representative. It will

make them nervous. Be prepared for unhappy campers.

I am almost sure federal statues state the school must answer your

request for services like testing within 2 weeks (a defined time

amount not indefinitely). It doesn't mean they do it in 2 weeks but

they should start the process. Each state is different on how they

do that. It doesn't sound like they have started your process.

Also the State Mental Health Service or state agency usually have

services at a no charge basis. You may want to contact them to see if

ABA is available through there. At the very least some parent

training

Someone gave you a autism.com web site - there is a wealth of

information there and simple safe bio treatments you can start. Be

aware that you may not want to start too much too soon because then

you may not know what helps and what doesn't.

I have 3 children ( 2 NT and 1 on the ASD) and it is tough getting

out to places like support meetings. So I use the internet for

support, and books. Maurice's book is good ( Let me hear

your voice). I cried all through it. It focuses on ABA. Karyn

Serrousi book is wonderful too but focuses on diet, and bio

treatments. ' book is great too.

Dr. Dorris Rapp has a book - Is this your child. I found that

fascinating.

There is a book called The Dreams you will Dream. It is book written

by parents there are 30 or so different vignettes abut families

dealing w/ kids with special disabilities. There are several

families with Autism. They have learned to accept their different

family and found a type of peace. I found that book very helpful.

No one knows where your road with your son will lead. We are all

here and what we have found is that many of us can talk w/family and

friends and they just don't understand. We all walk this together

and I think most of us would agree our kids are better ( some have

even been de-classified)

Stay the course. Ask for what you need. Take one day at a time. We

are here.

God Bless

Jeneane, Houston

Nick 5 -nt

3 ( PDD-Nos)

Beth 2-NT

May 12, 2003

Hi Kim,

I can't remember what treatment you're on or had, but if you're hypo as a

result of surgery or RAI, it's possible to become hyperthyroid again but not

likely.

Be sure to get copies of all your labs and be sure that your doctor is

ordering FT4, FT3 and TSH levels. You want to make sure that the meds you're

on provide you with normal FT4 and FT3 levels. The first year after ablative

therapy levels can jump around but with proper monitoring your doctor will

find a dose that works for you. Hypothyroidism can make eye symptoms worse.

In particular it can cause periorbital edema or swelling around the eyes and

eyelids. Take care, Elaine

May 12, 2003

So Dr says yes you are hypo, but did he increase your med's a little? Have

you and him talked about adding T3 like cytomel with your synthroid? I

currently take .75 of synthroid and 5 cytomel 3 times day. My TSH is very

low, below 1, but I feel great. Cytomel really made a difference for me.

If your doctor thinks you have to stay where you are because you are better

there than being hyper, then you need to find a new doctor. You should and

will be able to feel almost as good as you use to feel before this disease

ever started for you. I do, but I have recognized that I am a little on the

fragile side sometimes and take longer to rebound from trips, and girls

nights out.

Jen M

Help

> Hi everyone, I thought that I was getting better. I feel so sick and I'm

so tired I went to the Dr. today and he told me that I was hypo. I ALREADY

KNOW THIS! I wish that these dr's would understand that I want to know how I

can feel better.I asked him if I could take more of the synthroid and he

said that if I took to much it would make me hyper again and it wasn't good

for my heart but if I stayed hypo to long it isn't good for my health. I'm

so confused and upset. when I got to my car I laid my head down on the

steering wheel and cried. I'm so worried about this swelling in my eyes I

thought this med. would help me. I guess I have to give it time I have only

been taking it for one week today. Will this hypo ever be over and does this

mean that I'll be hyper again? please help I'm so confused. Thanks Kim H.

>

May 13, 2003

Hi Kim-

The 1/2 life of Synthroid is 6 days (the time it takes for your body to use

up half of the drug) so that's probably why your doctor is reluctant to

increase your dose so soon. Sometimes it takes 2 weeks to even see an

improvement. You should see a little improvement on where you were a week

ago unless you're becoming hypo at a faster rate. When is your next appt.?

When I change my Synthroid dose it takes 2 to 3 months to see the full

effect but I'll feel better within 1 or 2 weeks. Hopefully, your

endocrinologist will be willing to see you sooner if you're still not

improving within the week.

Take care,

dx & RAI 1987 (at age 24)