Leaving for DC - Neurosurgeon Visit

[Guest guest]

Hi all,

Just a brief note to say I will be off the email list starting this

weekend until I

return from DC and the neurosurgeons visit with Joe. We don't know if

he needs spinal chord surgery again or not. If he does, it could be weeks

or up to 2 months depending on the type of surgery he may need before

I can get home and back online. I know I will not be able to try to play

catch up too much if we are gone that length of time. Just know that you

all are in my thoughts and prayers... through the good times and the worst.

I may try to get my hubby to send an update to the group but I won't be

able to get the responses.

Big Hugs to you all.... Pray for Joe!

And My April Fools Baby is 7 TODAY!!!!

Praying for all of us,

AnnMarie L. - Complex IV (pre-diabetic, hypothyroid, adrenal/endocrine

issues)

Married to my best friend Rick,

Very Busy Mom to (15), (12), Cassandra (IS 7 Yrs OLD

TODAY!!) and

Joe (5) - complex IV, lactic acidosis, CP,

tethered chord syndrome, dysautonomia, and

a smile that never quits :-)

[Guest guest]

Frist of all :-) HAPPY BIRTHDAY JOE!!!!! Seven years old. That is how

old my Leah will be toward the end of April. No April Fools wishes

here. Just full of good wishes for a big boy.

Now, good luck with your doctor visits. You mind will be busy; but even

with appointments this group is never far from your mind. Will be eager

for news from you when you get back. If you can get to a computer, just

drop us a quick note.

Nerenhausen

mom to Leah

AM L wrote:

>Hi all,

>Just a brief note to say I will be off the email list starting this

>weekend until I

>return from DC and the neurosurgeons visit with Joe. We don't know if

>he needs spinal chord surgery again or not. If he does, it could be weeks

>or up to 2 months depending on the type of surgery he may need before

> I can get home and back online. I know I will not be able to try to play

>catch up too much if we are gone that length of time. Just know that you

>all are in my thoughts and prayers... through the good times and the worst.

>I may try to get my hubby to send an update to the group but I won't be

>able to get the responses.

>Big Hugs to you all.... Pray for Joe!

>And My April Fools Baby is 7 TODAY!!!!

>Praying for all of us,

>AnnMarie L. - Complex IV (pre-diabetic, hypothyroid, adrenal/endocrine

>issues)

>Married to my best friend Rick,

>Very Busy Mom to (15), (12), Cassandra (IS 7 Yrs OLD

>TODAY!!) and

>Joe (5) - complex IV, lactic acidosis, CP,

>tethered chord syndrome, dysautonomia, and

>a smile that never quits :-)

>

>

>

>Please contact mito-owner with any problems or questions.

>

[Guest guest]

Prayers that Joe handles whatever is about to come well. I am praying for him and your family.

Also I hope your family has fun with the special birthday celebration. We have a 7 year old girl as well, it really is a fun age.

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