Guest guest Posted April 2, 2005 Report Share Posted April 2, 2005 Dear Ann, That poem is so beautiful. Thank you and God bless you. Suhad Haddad -- Mom to Samya (Died 12-10-02 of Leigh's Synd.) & Leanna with same disease. Samya's Memorial Site: www.samyahaddad.com/.org/.net Email: Suhad1970@... Alt Email: Suhad@... AiM Chat: Suhad1970 From: A E Sent: Friday, April 01, 2005 11:20 PM To: Mito Subject: Re: Leanna death/details ((((((Suhad))))))), We embrace you and your husband. Tonight as I read " Love is All you Need " to , my heart imagined you reading to Leanna. I was in tears as I finished the book. All the tender moments you have shared with us, bring us closer together. -------- Heaven Holds Their Angels One afternoon when the day was bleak, Heaven took a daughter's hand and gave her strength where she was weak. No more pain will she ever feel, it came so sudden-it doesn't seem real... And now as her parents wait in their grief, it's love that strengthens their belief. Because they trust Him so, they let their daughter Leanna go. So Heaven holds 2 daughters until their parents are sent to be with them too. Samya and Leanna's lives made an everlasting impression. I am so forever grateful for knowing you. Holding you in the utmost prayer, divinely seeking His comfort and care. Take care and God Bless you all. (Ann Eide-Written in Memory of Samya and Leanna Haddad) ------- If there is any way I can help, call me. I am here for you always. Love and Sympathies- Ann and Family suhad1970@... wrote: To everyone, I obviously have not posted in a while. I want to thank all of you for your prayers and support while we watched Leanna lose her battle to mito on March 20th. I still cannot come to grips with how quickly she went. 14 days in the hospital, 12 of them in ICU. We chose to not intubate her and she wenr peacefully with no suffering and was able to smile until the day before she died. We did not want her to suffer like samya and the MRI showed that the disease was at the end stage and it was obvious from her clinical symptoms. It was a tough decision but we knew that intubation would have stretched her suffering only to allow her organ failure and her brainTO die before she was extubated. We have no regrets after seeing what intubation did to Samya. Leann died without a cough, a cold, pneumonia, or any bothersome issue. We gave her morphine that Sunday at 8 am because she was looking like it was too painful for her and they were having to give her manual breath for over 5 minutes. She died 8 hrs later at 400 pm. I thought she might die on Samyas birthday (march 17Th) but she hung in there. As much as I tried to prepare myself for the last 2 years for the reality of her condition and how quickly she could die and how the simplest cold could cause it, I still could not be ready for how quick it happened. Once again, it was a small congection cold on a Tuesday she had with no fever. She told me was tired. I kep her home on Wednesday and Thursday and Friday she went to school. She tookm a spelling test on Friday and got 100%. I took her home Friday and she was real tired. She started ptosis by the evening. My husband said when he came home from work that night and saw her on the couch he saw samya in her. He cried so much that night and so did I. We had the instinct this was the one feared illness. I spent the weekend getting fluid and calories in her and on Sunday she choked on her dinner in an abnormal way. She was having trouble swallowing and was too tired to chew. On Monday, we took her to her mito genetics doctor and he said if she could not keep caloried down, go to ER. I was able to get her to eat well enough until Wednesday morning. I took her to ER and in 24 hrs she made a turn around for the worst. Nothing they did helped. She was on massive IV and NG tube fed. The first night she lost bladder control twice at night in the hospital and I knew this was it because that was Samya all over again. The mito doc said there was nothing more we could do because the disease was moving too fast. By Friday she was in ICU and I finally stopped taking her to the bathroom myself because she had no head control on the toilet. She was officially in a diaper but still copmpletely aware cognitively. How sick mito is that robs a child of everything. On Monday an MRI proved what we knew already and we gave her comfort and laughed with her and loved her and kept our tears out of the room. My husband got to spend every day with her and every minute because his awesome brother drove 17 hrs from Colorado when he heard about Leanna and came to run our business so her dad can be with her. We are forever grateful to him because he gave us something money could never buy and that is time with Leanna. Her funeral service was beautiful and we found a plot right next to Samya. Ironically enough, last year when my brother in law Sam (the pilot) died that plot was unavailable because it was pre purchased. The people copped out of it and it was available for Leanna. I guess God was saving it for Leanna. My heart is forever broken but I pray daily for strength to live this life until God decided it is my time. I love you all and may God bless you all. Love, Suhad Haddad -- Mom to Samya (Died 12-10-02 of Leigh's Synd.) & Leanna with same disease. Samya's Memorial Site: www.samyahaddad.com/.org/.net Email: Suhad1970@... Alt Email: Suhad@... AiM Chat: Suhad1970 Please contact mito-owner with any problems or questions. Yahoo! Messenger Show us what our next emoticon should look like. Join the fun. Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
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