RE: hospital update on Hailee

[Guest guest]

, So sorry to hear that Hailee is in so much pain. We will say

prayers for your strength and Hailee's comfort.

Geri-Anne and Wyatt, Complex I-

-- In Mito , Angels4hailee@a... wrote:

> Well hailee is on day 3 of treatment for her tumor.. they are having

problems with pinpointing it,, the ct scan was to blurry and they cant

do an mri on her abdomen.. So until the tumor is big enough to be seen

they cant do radiation. So she is to stay on the gamma globulin

treatment.. Our dr said we will probally have to come in every couple

of months for treatments, as symptoms show until they figure out how

to treat, or i get frustrated and look else where.

>

> She has run into other complications now, her 24 hour urine came

back with dopamine (sp) in it, and her bp has been high so tomorrow

the kidney dr is comming in to discuss what needs to be done...

>

> She is miserable, everything hurts, and all she does is cry and

scream...

>

[Guest guest]

I hope Hailee starts to feel better soon. Lots of hugs and prayers.

carrie MSN Premium helps protect against viruses, hackers, junk e-mail pop-ups.

[Guest guest]

Hi,

Just wanted to let you know that I am praying for

Hailee and you. Hopefully they will find a better way

to test and treat her.

Praying for all of us,

AnnMarie L. - Complex IV (pre-diabetic, hypothyroid, adrenal/endocrine

issues)

Married to my best friend Rick,

Very Busy Mom to (15), (12), Cassandra (6) and

Joe (5) - complex IV, lactic acidosis, CP,

tethered chord syndrome, dysautonomia, and

a smile that never quits :-)

Angels4hailee@... wrote:

Well hailee is on day 3 of treatment for her tumor.. they are

having problems with pinpointing it,, the ct scan was to blurry and

they cant do an mri on her abdomen.. So until the tumor is big enough

to be seen they cant do radiation. So she is to stay on the gamma

globulin treatment.. Our dr said we will probally have to come in

every couple of months for treatments, as symptoms show until they

figure out how to treat, or i get frustrated and look else where.

She has run into other complications now, her 24 hour urine came

back with dopamine (sp) in it, and her bp has been high so tomorrow

the kidney dr is comming in to discuss what needs to be done...

She is miserable, everything hurts, and all she does is cry and

scream...

[Guest guest]

Hi :

Praying for you and Hailee. What else can she go through? It is so hard

to believe with all our medical technology that they can't do more specialize

xrays. Why can't they do any mri on her abdomen? I wish I could stop the

pain for her. Know that you are in my thoughts and prayers throughout my

week.

Nerenhausen

mom to Leah

Angels4hailee@... wrote:

Well hailee is on day 3 of treatment for her tumor.. they are having

problems with pinpointing it,, the ct scan was to blurry and they cant do

an mri on her abdomen.. So until the tumor is big enough to be seen they

cant do radiation. So she is to stay on the gamma globulin treatment..

Our dr said we will probally have to come in every couple of months for treatments,

as symptoms show until they figure out how to treat, or i get frustrated

and look else where.

She has run into other complications now, her 24 hour urine came back

with dopamine (sp) in it, and her bp has been high so tomorrow the kidney

dr is comming in to discuss what needs to be done...

She is miserable, everything hurts, and all she does is cry and scream...

Please contact mito-owner with any problems or questions.

[Guest guest]

, thanks, they cant do an mri anywhere else except the brain because she has a vagul nerve stiumulator, and the mri can cause them to heat up and explode inside the body..

Re: hospital update on Hailee

Hi :Praying for you and Hailee. What else can she go through? It is so hard to believe with all our medical technology that they can't do more specialize xrays. Why can't they do any mri on her abdomen? I wish I could stop the pain for her. Know that you are in my thoughts and prayers throughout my week. Nerenhausenmom to LeahAngels4hailee@... wrote:

Well hailee is on day 3 of treatment for her tumor.. they are having problems with pinpointing it,, the ct scan was to blurry and they cant do an mri on her abdomen.. So until the tumor is big enough to be seen they cant do radiation. So she is to stay on the gamma globulin treatment.. Our dr said we will probally have to come in every couple of months for treatments, as symptoms show until they figure out how to treat, or i get frustrated and look else where.

She has run into other complications now, her 24 hour urine came back with dopamine (sp) in it, and her bp has been high so tomorrow the kidney dr is comming in to discuss what needs to be done...

She is miserable, everything hurts, and all she does is cry and scream...

Please contact mito-owner with any problems or questions.

[Guest guest]

Hi :

Thanks for explaining. I pray that things will change for you and Hailee.

How are you doing during all of this? Are you working or taking time off

now?

Nerenhausen

mom to Leah

Angels4hailee@... wrote:

, thanks, they cant do an mri anywhere else except the brain because

she has a vagul nerve stiumulator, and the mri can cause them to heat up

and explode inside the body..

Re: hospital update on Hailee

Hi :

Praying for you and Hailee. What else can she go through? It is so hard

to believe with all our medical technology that they can't do more specialize

xrays. Why can't they do any mri on her abdomen? I wish I could stop the

pain for her. Know that you are in my thoughts and prayers throughout my

week.

Nerenhausen

mom to Leah

Angels4hailee@...

wrote:

Well hailee is on day 3 of treatment for her tumor.. they are having

problems with pinpointing it,, the ct scan was to blurry and they cant do

an mri on her abdomen.. So until the tumor is big enough to be seen they

cant do radiation. So she is to stay on the gamma globulin treatment..

Our dr said we will probally have to come in every couple of months for treatments,

as symptoms show until they figure out how to treat, or i get frustrated

and look else where.

She has run into other complications now, her 24 hour urine came

back with dopamine (sp) in it, and her bp has been high so tomorrow the

kidney dr is comming in to discuss what needs to be done...

She is miserable, everything hurts, and all she does is cry and

scream...

Please contact mito-owner

with any problems or questions.

Please contact mito-owner with any problems or questions.

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[Guest guest]

, im holding up... I dont work, hailee is sick too often to keep a job