Re: adrenal problems?

[Guest guest]

My adrenal problems are so severe I am almost

bedridden. I am so fatigued by adrenal insufficiency,

and every 3 months or so I go into adrenal crisis and

I land in the hospital for a week or so. It starts

with diarrhea, vomiting incredible fatigue disoriented

and insatiable thirst very dangerously low blood

sodium

and I started to go into a coma but was in er and meds

were given immediately. After a week in the hospital

and many i.v's etc., Than I am sent home with home

care which is the case now I had a crisis at the end

of march. Nurses and physical therapists come twice a

week. It beets being in the hospital but it does get

very lonely during the week when everyone is off to

work! I wish my endocrinologist could figure out how

to get all of this under control? Oh well bye for now

Anne p.s. youngest daughter just diagnosed with

adrenal problems, it's very upsetting.

[Guest guest]

aNNE, i'M SO SORRY THAT YOU ARE EXPERIENCING THIS.  I'm sure that the scary part

is that your daughter is also dealing with similar issues.  Did yuou're start

with sarcoidosis or longterm steroid use (ie. prednisone, solu-medrol)? That

seems to be a huge precursor to adrenal insufficiency.  A good endocrinologist

or immunologist is needed to help you thru this so that the pattern can be

controlled. 

My heart goes out to you,

Traice

NS Co-owner/moderator

Re: adrenal problems?

My adrenal problems are so severe I am almost

bedridden. I am so fatigued by adrenal insufficiency,

and every 3 months or so I go into adrenal crisis and

I land in the hospital for a week or so. It starts

with diarrhea, vomiting incredible fatigue disoriented

and insatiable thirst very dangerously low blood

sodium

and I started to go into a coma but was in er and meds

were given immediately. After a week in the hospital

and many i.v's etc., Than I am sent home with home

care which is the case now I had a crisis at the end

of march. Nurses and physical therapists come twice a

week. It beets being in the hospital but it does get

very lonely during the week when everyone is off to

work! I wish my endocrinologist could figure out how

to get all of this under control? Oh well bye for now

Anne p.s. youngest daughter just diagnosed with

adrenal problems, it's very upsetting.

     

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[Guest guest]

Yes my adrenal p. are from sarc granulomas that completely destroyed my endo.

system i was not on steroids at the time although i have had the neuro sarc

since 89 which was found on the lining of my brain and in the skull bone and

facial bones destroying nerves by compressing them after the inflammation moves

on and the granulomas harden. The neurosarc had changed my quality of life and

now the adrenal problems have sapped what strength I have left and my stamina

sucks. Of course now I am on very high doses of steroids injections and oral and

I am not happy about that at all. But I have a supportive family and my husband

is wonderful. If my 4yr old granddaughters visit I feel like a million bucks

when I am with them and than I crash! But it's worth for me I do not see them

often enough because of distance and busy schedules parents both working etc.,

Bye for now Anne