Guest guest Posted July 7, 2008 Report Share Posted July 7, 2008 Hello Everyone, I am trying to find out as much information as I can. We live in the Bahamas, and my mom has neurosarcoidosis. Spine / Brain are involved. We can not seem to find a doctor anywhere that can help her. She is on methatrexate & steroids, but is now having increased dizzy spells and nausea that accompanies it. Does anyone know of any doctors who specialize in this? She has been battling this for 4 years and seems to just be getting worse and worse. Please Help. (Bahamas) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2008 Report Share Posted July 9, 2008 WOW...don't everyone answer all at once. > > Hello Everyone, > > I am trying to find out as much information as I can. We live in the > Bahamas, and my mom has neurosarcoidosis. Spine / Brain are > involved. We can not seem to find a doctor anywhere that can help > her. > She is on methatrexate & steroids, but is now having increased dizzy > spells and nausea that accompanies it. > Does anyone know of any doctors who specialize in this? > She has been battling this for 4 years and seems to just be getting > worse and worse. > Please Help. > > (Bahamas) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2008 Report Share Posted July 9, 2008 Hi , I'm so sorry that we've not been able to get back to you. I'm in sunny California, and right now we are in possible alert to evacuate due to forest fires within a very short distance from home. All of the mods and owners are sick with this disease also-- and right now, our other owner is dealing with the floods of the Mississippi River. WWW.sarcoidosissharma has a list of specialists that deal with sarc. I don't know of any in the Bahamas-- but it's possible. Our ARCHIVES and LINKS have numerous articles, if you scroll down to the bottom of this and every email from the group, you will find a section called Neurosarcoid Community and the links to that part of the group site is there for your use. You can print out the articles, take them to the docs and share with family so they understand what is going on. Again, I apologize for not being able to get back sooner--- and am not sure how long it will be before I'm back online, especially if we do have to evacuate. (Yep, the puter is coming with me...) Ask whatever questions, and someone will get back to you asap. Sincerely, Tracie NS Co-owner/moderator Re: New Member - Bahamas WOW...don't everyone answer all at once. >> Hello Everyone,> > I am trying to find out as much information as I can. We live in the > Bahamas, and my mom has neurosarcoidosis. Spine / Brain are > involved. We can not seem to find a doctor anywhere that can help > her. > She is on methatrexate & steroids, but is now having increased dizzy > spells and nausea that accompanies it.> Does anyone know of any doctors who specialize in this?> She has been battling this for 4 years and seems to just be getting > worse and worse.> Please Help.> > (Bahamas)> Quote Link to comment Share on other sites More sharing options...
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