Re: [SPAM] Re: New Member - Bahamas

[Guest guest]

I have a wonderful Dr. However I don't know as you can call him a specialist.

I to have the dizziness with my Nuerosarcidosis. I take meclazine. (sp) It seems to work great for me. So well I am on it PRN now. (when needed).

I am happy to meet you however I am sorry it is this way. I have had this for 3 years now and am starting to walk with a walker. I do drive my car after I had it fixed with manual controls. I have sarcidosis in the brain affecting the signal to my lower body.

I am sure one of the mediators of this wonderful group will get back to you on this. You have to be patient because some are not doing so well right now and some are involved with the Floods and Fires here in the US. They have so many questions to answer that sometimes it takes a while.

If you just need to rant you can count on me to listen. Until then you and your mother have my prayers.

God Bless you

Jackie from Wisconsin

[sPAM] Re: New Member - Bahamas

WOW...don't everyone answer all at once. >> Hello Everyone,> > I am trying to find out as much information as I can. We live in the > Bahamas, and my mom has neurosarcoidosis. Spine / Brain are > involved. We can not seem to find a doctor anywhere that can help > her. > She is on methatrexate & steroids, but is now having increased dizzy > spells and nausea that accompanies it.> Does anyone know of any doctors who specialize in this?> She has been battling this for 4 years and seems to just be getting > worse and worse.> Please Help.> > (Bahamas)>