[SPAM] Re: New Member - Bahamas

[Guest guest]

Hi Jackie / Traci,

My moms name is Jackie () as well. She is 56 years old.

She also had to be hospitalized in March with 3 bloodclots, one in

each lung and one in the groin. Her doctor thinks it could have come

from the sarc, Is that possible? Mom can not drive anymore (doctors

orders) due to dizzyness and double vision. She usually doesnt have

it often, but the last week its been almost everyday. She is

debilitated by the nausea.

I am so scared for her and nothing seems to be helping.

There are no specialists in Nassau, Bahamas where she lives, she went

to Cleveland Clinic in Ohio, (after a HUGE fiasco with Cleveland

Clinic in Florida who told her when she got there that they couldnt

help her at all.) She saw a doctor in Ohio, who told her what meds to

try (methotrexate) and that she (the doctor) would monitor her from

there. The trip cost mom $15,000.00. And when she had her follow up

MRI 3 months later the doctor in Ohio took almost 2 months to read it

and then told her that she would not be able to follow up with her

and basically told her off for calling to try to get results.

It was a TERRIBLE experience for my mom, and she doesnt want to go to

the US again to a doctor, but I know she can't get the help she needs

in the Bahamas.

I couldnt Open the link from Traci with the specialists, (are there

any neuro specialists at all?)

The next drug on the list that they are talking about for my mom is

cytoxin, has anyone else taken it? Has it helped?

Im sorry I was impatient, I just do not know where else to turn.

Thanks for your replies.

> >

> > Hello Everyone,

> >

> > I am trying to find out as much information as I can. We live

in

> the

> > Bahamas, and my mom has neurosarcoidosis. Spine / Brain are

> > involved. We can not seem to find a doctor anywhere that can

help

> > her.

> > She is on methatrexate & steroids, but is now having increased

> dizzy

> > spells and nausea that accompanies it.

> > Does anyone know of any doctors who specialize in this?

> > She has been battling this for 4 years and seems to just be

> getting

> > worse and worse.

> > Please Help.

> >

> > (Bahamas)

> >

>

[Guest guest]

, and anyone else who might be suffering from vertigo

or have a relative/friend with vertigo, I have seen this exercise: http://www.dizziness-and-balance.com/disorders/bppv/bppv.html

have INCREDIBLE results with two people close to me. It might be worth a try

for your mother, .

Good luck,

Michele