Guest guest Posted July 13, 2008 Report Share Posted July 13, 2008 , I am on cytoxan 1 a month right now. It is helping me but I have not had a firm diagnosis just a presumptive one. My rheumatologist is doing the infusions. Cytoxan makes me sick for about 2-3 days but by the 5th day I feel so much better. Hope this helps. Terri G. > > > > > > Hello Everyone, > > > > > > I am trying to find out as much information as I can. We live > in > > the > > > Bahamas, and my mom has neurosarcoidosis. Spine / Brain are > > > involved. We can not seem to find a doctor anywhere that can > help > > > her. > > > She is on methatrexate & steroids, but is now having increased > > dizzy > > > spells and nausea that accompanies it. > > > Does anyone know of any doctors who specialize in this? > > > She has been battling this for 4 years and seems to just be > > getting > > > worse and worse. > > > Please Help. > > > > > > (Bahamas) > > > > > > Quote Link to comment Share on other sites More sharing options...
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