OCD's (?)

[Guest guest]

,

My son has ocd's within his autism and probably mito. He can drive me crazy as he is so fast and easier for him to just do it vs tell me. Think it is cool that Nikke can tell you.. she has a thing for 3's. And I imagine feels better when she does it in 3's.

My son, it just irritates him to no end, and they come and go and come back. Like in the last 2 days.. he is sick... they are magnifying on him. Like since he is getting older though that they are more cleaning up. I guess the only info I came up with working with ocd behaviors is that the person needs to realize it. ANd my kid maybe realizes it but can't converse. Hope others can help. Yet completely understand how they affect others in the house.

Kathy..

[Guest guest]

Does any one out there have experience with OCD's and their Mito kids?

I have been overlooking Nikki's twitching and odd behavior because there

are so many

other things to worry about. However, yesterday when we came home from

CCD she

closed the door behind us and opened it again and then again. I asked

her what she was doing.

I realized I caught her off guard. She said " well, you know that

3-thing I do, well I have to

open and close the door 3x now " . I was shocked. I tried not to let it

show but I've been concerned.

In talking to my Mom, who was a special needs teacher for 19 years-she

said it's a control issue.

It's the only thing she has control over. Her illness- she has no

control over. But opening the door,

moving her fingers, cracking her knuckles and whatever else she does in

threes- are in her control.

What do I do? Do I say something to her? Do I get her help with it.

I'm not sure if its affecting

her life at school. I wonder what I should do-Not more testing-not more

explaining-I just want

her to stop behaving oddly so that we can just deal with the medical

side. What a terrible mother.

I'm tired. I said something to my husband tonight and he responded the

same way I did... " what next? "

Help................

...Mom to Nikki 10/ Mito/Gerd/CVS

[Guest guest]

We've had these issues off and on. Our is 16. At about the age of ten he

had to make certain marks when writing. He told me he felt compelled to make

these marks. He sniffs--a lot. One neuro told us he had a tic. The marks went

away

and have been replaced over the years. Then the replacements get replaced. I

guess

that I don't worry about them too much because they've never really seemed to

control his life. If they ever make things too difficult, we'll address them.

This is one thing I decided to take a chill pill about.

[Guest guest]

Hi Michele, my Matt suffers from OCD and has mito, he also has a

mild form of PDD-autism and SID- sensory intergration dysfunction,

For us when he was younger (he's now 8), he was so out of control

with his OCD and SID, it was interfering with his and our family

life at home, school and in the community. We had to get help at

that point. We had a team of behavior therapist working with him for

all the issues. He still has these issues, but not as intense as

when he was younger. The OCD in a way is a control issue, but for

Matt it was even more, it relieved fustration and fear too. Every

now and again, (during illness or if going through alot of testing

ie..hospital or school) the OCD is more noticable, but we redirect

him with a different intrest, or if he is able to verbalize whats

going on in his head, we talk about it with him and try to eleviate

his fears or fustrations. He still has OCD rituals such as where he

sits to eat (we have to sit in same order we sit at home if we are

out somewhere), he must get dressed a certain way, toys in certain

order, get into bed the same way each time with blankets and stuffed

animals a certain way. These things we can handle. Not wanting to

leave the house on cloudy days, makes things difficult, not

diviating or taking different route to places we are driving to (no

short cuts) must take same route to school, grandmoms, church,

grocery store, this gets hard too, sometimes insane. These things

he cannot handle yet, he will scream and tantrum, but we are still

working on things like that. When the teacher has to leave the room

and she tells the students to be quiet and they are not Matt has a

tizzy fit in the class room, so things like that must be addressed.

IF you can handle the little things and they are not interfering

with her or school or your family life, i wouldnt worry to much, but

if things start getting out of control for her and you, then I'd say

get help. Sorry i dont have more info for you, i can just tell ya

what we been through and what has helped us. Barb

[Guest guest]

Dear :

So sorry to hear about Nikki's problems. I can so relate to them

except the counting aspect, but definitely other parts. My oldest

son, 13, has OCD type behaviors (like playing with imaginary light

sabers and sounds - sometimes can't stop and drives me crazy - a

little embarassing in a store or at school at age 13) and also

difficulty with changes and other OCD characteristics. He has tics,

too. These two (tics and OCD) are related according to the recent

research. Tics are motor repetitive actions and the typical OCD

behaviors are behaviors (like the counting) or repetitive thoughts

(getting stuck in topics or not wanting to make transitions). I read

a book that was good called OCD in Children (I believe, I could get

you the exact title). I think it is very good. When my youngest has

developed these tics, too, now, I think oh goodness, is he going down

the OCD road, too. Time will tell. They both have mito. I'm not

sure how frequent the connection is between OCD and mito but it is

sure in my boys. We have hooked up with a psychiatrist for our

oldest and it has been very valuable. I think that would be

something to pursue as another consultant on her care. It takes

months to get in and then they're in place if there's a crisis or

medications need to be ordered or tried. My oldest uses medication

for OCD type behaviors. It helps some but has been stubborn. For

Seth, psychological problems (OCD, depression, etc) have been a big

part in the severity of his disease especially in the last few years.

Good luck

Cindy (mom to Seth, 13, and Ben, 9 both mito)

> Does any one out there have experience with OCD's and their Mito

kids?