Guest guest Posted April 5, 2005 Report Share Posted April 5, 2005 Dear Friends, I am currently remodeling the Heartbeats For Mito Website, dedicated to children and families affected by Mitochondrial Disease. At the present, there is a slide show with Mito Angels,.Some are newly added angels to this site. It may take a couple of moments to load, java script. More additions will take place in the next few days. If you wish to add your "living" child or your mito angel to the site, please send me an email. Thanks.... Ann http://heartbeatsformito.org Ann (mito), mom to ( 4 ys) - asthma, seizures, tremors, milk intolerance, reflux, ptosis, vision problems, gait problems, speech variants, headaches, probable Strokelike episodes, suspected mito, and to our angel ^j^ Kate. Visit my page at: www.caringbridge.org/ms/anne02 __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2005 Report Share Posted April 5, 2005 Hi Ann: I'd love to have Kirkland on your site. I have you linked up to his caring bridge page. Do you need a photo too? and Kirkland www.caringbridge.org/canada/kirklandk/ A E wrote: Dear Friends, I am currently remodeling the Heartbeats For Mito Website, dedicated to children and families affected by Mitochondrial Disease. At the present, there is a slide show with Mito Angels,.Some are newly added angels to this site. It may take a couple of moments to load, java script. More additions will take place in the next few days. If you wish to add your "living" child or your mito angel to the site, please send me an email. Thanks.... Ann http://heartbeatsformito.org Ann (mito), mom to ( 4 ys) - asthma, seizures, tremors, milk intolerance, reflux, ptosis, vision problems, gait problems, speech variants, headaches, probable Strokelike episodes, suspected mito, and to our angel ^j^ Kate. Visit my page at: www.caringbridge.org/ms/anne02 __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2005 Report Share Posted April 5, 2005 Hi - Sure send me one. That would be great. There will be two slide shows, going on the home page. Mito Angels at the top. Below will be children affected with Mito. Children can be any age and parents can also be featured.... For those that cannot see the slide shows, a link will direct you to different page for viewing. --- Also a new feature is Mito Dedication Page: Each child will have a short bio added about them...Artwork can be submitted to show off their talents. Lots of new things are to be added........ Thanks for your interest... AnnKilbride wrote: Hi Ann: I'd love to have Kirkland on your site. I have you linked up to his caring bridge page. Do you need a photo too? and Kirkland www.caringbridge.org/canada/kirklandk/ A E wrote: Dear Friends, I am currently remodeling the Heartbeats For Mito Website, dedicated to children and families affected by Mitochondrial Disease. At the present, there is a slide show with Mito Angels,.Some are newly added angels to this site. It may take a couple of moments to load, java script. More additions will take place in the next few days. If you wish to add your "living" child or your mito angel to the site, please send me an email. Thanks.... Ann http://heartbeatsformito.org Ann (mito), mom to ( 4 ys) - asthma, seizures, tremors, milk intolerance, reflux, ptosis, vision problems, gait problems, speech variants, headaches, probable Strokelike episodes, suspected mito, and to our angel ^j^ Kate. Visit my page at: www.caringbridge.org/ms/anne02 __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2005 Report Share Posted April 6, 2005 What a beautiful page. Thanks for sharing. And Kirkland is a beauty! Lori and (5 1/2, complex I and IV) Re: Website Revamped Hi - Sure send me one. That would be great. There will be two slide shows, going on the home page. Mito Angels at the top. Below will be children affected with Mito. Children can be any age and parents can also be featured.... For those that cannot see the slide shows, a link will direct you to different page for viewing. --- Also a new feature is Mito Dedication Page: Each child will have a short bio added about them...Artwork can be submitted to show off their talents. Lots of new things are to be added........ Thanks for your interest... AnnKilbride wrote: Hi Ann: I'd love to have Kirkland on your site. I have you linked up to his caring bridge page. Do you need a photo too? and Kirkland www.caringbridge.org/canada/kirklandk/ A E wrote: Dear Friends, I am currently remodeling the Heartbeats For Mito Website, dedicated to children and families affected by Mitochondrial Disease. At the present, there is a slide show with Mito Angels,.Some are newly added angels to this site. It may take a couple of moments to load, java script. More additions will take place in the next few days. If you wish to add your "living" child or your mito angel to the site, please send me an email. Thanks.... Ann http://heartbeatsformito.org Ann (mito), mom to ( 4 ys) - asthma, seizures, tremors, milk intolerance, reflux, ptosis, vision problems, gait problems, speech variants, headaches, probable Strokelike episodes, suspected mito, and to our angel ^j^ Kate. Visit my page at: www.caringbridge.org/ms/anne02 __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2005 Report Share Posted April 6, 2005 Are you planning on keeping the link/part that shows a look into Mito using my girls' photos. I have enjoyed that part so many times and have wished so badly that I knew how to do it for my own site. If you want to keep it on your site, that would be great. But if not I would understand. I am looking forward to the new setup. Hope you are doing ok today. See www.caringbridge.org/ia/mitomomof9 and www.heartbeatsformito.org (a photo look into Mito) Darla: mommy to Asenath (5) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube, hypotonicity, disautonomia, SID, global delays, cyclic vomiting, bladder issues, some wheelchair use, eye issues, gastric emptying issues... Zipporrah (17 months) Mito, strokes, neuro-motor planning, SID, GERD, dysphasia, G-tube fed, speech delays, extreme fatigue, aberrant subclavian artery, disautonomia, hypertonicity, migraines, possible seizures, dumping syndrome, iron deficiency... Luke (17)migraines, sensory issues, & some evidence of SLE's... Leah (14), Rachael (13), Isaac (11), Tirzah (8), Kezia (4), Marquis (3) Joey (15 months) with hydrocephalus, dysgenesis of the corpus callosum, encephalomalacia & leukomalacia, G-tube, GERD, immobile, severe dev. delays, left hemiplegia (arm)... (15 months) SID, dev. delays, right hemiparesis issues... Website Revamped > Dear Friends, > I am currently remodeling the Heartbeats For Mito Website, dedicated to > children and families affected by Mitochondrial Disease. > > At the present, there is a slide show with Mito Angels,.Some are newly > added angels to this site. It may take a couple of moments to load, java > script. > > More additions will take place in the next few days. > > If you wish to add your " living " child or your mito angel to the site, > please send me an email. > > Thanks.... > > Ann > > http://heartbeatsformito.org > > > > > > Ann (mito), mom to ( 4 ys) - asthma, seizures, tremors, milk > intolerance, reflux, ptosis, vision problems, gait problems, speech > variants, headaches, probable Strokelike episodes, suspected mito, and to > our angel ^j^ Kate. > > Visit my page at: www.caringbridge.org/ms/anne02 > > > > > > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
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