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Thank you Marla

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Dear Marla,

Thank you for your encouraging words. They mean a lot. Over the last

12 years I gone from a profession I loved as a medical assistant to

being on disability. I have lost my sister, my Mom & Dad and 5 yrs ago

my husband. I think I have learned how to grieve for everything but

the life I had. I can hardly put a sentence together anymore and

never are able to come up with an answer to a medical question off the

top of my heard. I went back to school to be a Master Gardener, yet

again can't answer the questions of clients without looking everything

up. I have not been on any depression medication, but an considering

asking my NP about it. I just had my physical and should have talked

to her then,but a combinations of " last straws " have occurred since then

and I think maybe it's time to try one. Of course the is no test to

prove I has NS, however I do have multi system Sarcoid....which to me

means NS is very likely too. My brain is so dysfunctional.

Thanks for listening. I do try to remember I have lots of blessing in

my life too. Somedays it is just hard. I feel like I am just

treading water and I can't swim!

TTFN

Ruth

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Hi Ruth, I agree with Matt totally. Me, myself for having depression/anxiety,

have been helped a lot by taking these meds. Once you find the right one or

combo, you should feel a big change. Mention Cymbalta , that's one for

depression/anxiety and pain. I am on that myself and I believe a lot of others

are. I can't believe all that you have been through, no wonder you feel like

you do. I think you should call your dr right away.

Debbie T.Co-Moderator

>

> Subject: Thank you Marla

> To: Neurosarcoidosis

> Date: Monday, July 21, 2008, 2:49 AM

> Dear Marla,

> Thank you for your encouraging words. They mean a lot.

> Over the last

> 12 years I gone from a profession I loved as a medical

> assistant to

> being on disability. I have lost my sister, my Mom &

> Dad and 5 yrs ago

> my husband. I think I have learned how to grieve for

> everything but

> the life I had. I can hardly put a sentence together

> anymore and

> never are able to come up with an answer to a medical

> question off the

> top of my heard. I went back to school to be a Master

> Gardener, yet

> again can't answer the questions of clients without

> looking everything

> up. I have not been on any depression medication, but an

> considering

> asking my NP about it. I just had my physical and should

> have talked

> to her then,but a combinations of " last straws "

> have occurred since then

> and I think maybe it's time to try one. Of course

> the is no test to

> prove I has NS, however I do have multi system

> Sarcoid....which to me

> means NS is very likely too. My brain is so dysfunctional.

>

> Thanks for listening. I do try to remember I have lots of

> blessing in

> my life too. Somedays it is just hard. I feel like I am

> just

> treading water and I can't swim!

>

> TTFN

>

> Ruth

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Ruth, I cannot imagine going through so many losses in such a short time, you really do need to take care of you, I was a Medical Assistant for 15 years, then went back to school and got my RN, I loved my Job, I have been

away for 5 years, and it was just this past year that I have been able to go back to the hospital and see my nursing buddies, and the supervisor always asks how I'm doing and if I'm ready to come back. And i just want

to scream YES!!! but I know the answer is still no. There was a time when I had to go on antidepressants and it was a good thing, I knew I was depressed, that was the first step, then when I saw my doctor 2nd step, he agreed.

It's difficult diagnosing NS, my MRI's are normal too, but I can't lift my leg off a chair, I can only shuffle walk a few feet then I can no longer walk, I had the brain fog big time, everything was over whelming I couldn't make a decision,

and that was hard, as I made a lot of the decisions in this home. Now I am on Remicade and it is working great, the brain fog is so much better, still have trouble talking like an educated adult, and I am always asking what does that mean,

and get the look back, like are you kidding, I smile and repeat myself, I know somewhere in my data base I have the answer, it's just where?? It took over a year to dx NS, then it took another 4 years to get the right drug, so

hang in there, stand up for your needs, be vocal, that is so important or if you have a family member or friend gowith you to your visits to help vocalize your needs and help you remember what the doc had to say.

Be kind to yourself, and do talk to someone about your meds, sometimes too many meds can be a problem too. Know I am praying for you. Hugs, Marla

Dear Marla,

Thank you for your encouraging words. They mean a lot. Over the last

12 years I gone from a profession I loved as a medical assistant to

being on disability. I have lost my sister, my Mom & Dad and 5 yrs ago

my husband. I think I have learned how to grieve for everything but

the life I had. I can hardly put a sentence together anymore and

never are able to come up with an answer to a medical question off the

top of my heard. I went back to school to be a Master Gardener, yet

again can't answer the questions of clients without looking everything

up. I have not been on any depression medication, but an considering

asking my NP about it. I just had my physical and should have talked

to her then,but a combinations of " last straws " have occurred since then

and I think maybe it's time to try one. Of course the is no test to

prove I has NS, however I do have multi system Sarcoid....which to me

means NS is very likely too. My brain is so dysfunctional.

Thanks for listening. I do try to remember I have lots of blessing in

my life too. Somedays it is just hard. I feel like I am just

treading water and I can't swim!

TTFN

Ruth

-- Marla Bramer Independent Beauty Consultant Kaymbramer@... www.marykay.com

'I know the plans I have for you, declared the Lord, 'plans to prosper you and not to harm you; Plans to give you a future and a hope

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Hi Marla,

I hope you are doing better. Not being able to use your leg sucks.

I just wanted to say that I identify with your career ambitions. It's been 5

yrs out of work for me and I still miss it immensely. I just talked to a friend

yesterday , discussing finally going back to visit some people. I am afraid of

the same reaction. (Oh, you look so good, when are you coming back?) Same as

you almost. I want to say yes so bad, but I also know I couldn't handle it

physically. It is depressing and I am the " queen " of depression here.

I am happy the Remicade is working for you. Myself, I had a bad reaction with

my blood and had to stop. That was disappointing. But hang in there and I hope

you are feeling well today.

Hugs,

Debbie T.Co-Moderator

>

> > Dear Marla,

> > Thank you for your encouraging words. They mean a lot.

> Over the last

> > 12 years I gone from a profession I loved as a medical

> assistant to

> > being on disability. I have lost my sister, my Mom

> & Dad and 5 yrs ago

> > my husband. I think I have learned how to grieve for

> everything but

> > the life I had. I can hardly put a sentence together

> anymore and

> > never are able to come up with an answer to a medical

> question off the

> > top of my heard. I went back to school to be a Master

> Gardener, yet

> > again can't answer the questions of clients

> without looking everything

> > up. I have not been on any depression medication, but

> an considering

> > asking my NP about it. I just had my physical and

> should have talked

> > to her then,but a combinations of " last

> straws " have occurred since then

> > and I think maybe it's time to try one. Of course

> the is no test to

> > prove I has NS, however I do have multi system

> Sarcoid....which to me

> > means NS is very likely too. My brain is so

> dysfunctional.

> >

> > Thanks for listening. I do try to remember I have lots

> of blessing in

> > my life too. Somedays it is just hard. I feel like I

> am just

> > treading water and I can't swim!

> >

> > TTFN

> >

> > Ruth

> >

> >

> >

>

>

>

> --

> Marla Bramer

> Independent Beauty Consultant

> Kay

>

> mbramer@...

> www.marykay.com

> 'I know the plans I have for you, declared the Lord,

> 'plans to prosper you

> and not to harm you; Plans to give you a future and a hope

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