Re: Darla/Bad weather yesterday

[Guest guest]

Glad to hear you are all ok. I am sure your son enjoyed the visit to

the fire station, even under those conditions.

We are doing well here and I am regaining my strength pretty well. I

still have numbness in my left leg though and hoping it goes away soon.

I will look for a few good photos of the girls for your site and send

it within the next few days. Here is one that is quite cute of the girls

laughing on a teeter-totter together. (Attachment) Let me know if you want

anything else as I am more than willing to be a part of your site.

See www.caringbridge.org/ia/mitomomof9 and www.heartbeatsformito.org (a

photo look into Mito)

Darla: mommy to

Asenath (5) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomia, SID, global delays, cyclic vomiting, bladder

issues, some wheelchair use, eye issues, gastric emptying issues...

Zipporrah (17 months) Mito, strokes, neuro-motor planning, SID, GERD,

dysphasia, G-tube fed, speech delays, extreme fatigue, aberrant subclavian

artery, disautonomia, hypertonicity, migraines, possible seizures, dumping

syndrome, iron deficiency...

Luke (17)migraines, sensory issues, & some evidence of SLE's...

Leah (14), Rachael (13), Isaac (11), Tirzah (8), Kezia (4), Marquis (3)

Joey (15 months) with hydrocephalus, dysgenesis of the corpus callosum,

encephalomalacia & leukomalacia, G-tube, GERD, immobile, severe dev. delays,

left hemiplegia (arm)...

(15 months) SID, dev. delays, right hemiparesis issues...

Website Revamped

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>

> > Dear Friends,

> > I am currently remodeling the Heartbeats For Mito Website, dedicated to

> > children and families affected by Mitochondrial Disease.

> >

> > At the present, there is a slide show with Mito Angels,.Some are newly

> > added angels to this site. It may take a couple of moments to load, java

> > script.

> >

> > More additions will take place in the next few days.

> >

> > If you wish to add your " living " child or your mito angel to the site,

> > please send me an email.

> >

> > Thanks....

> >

> > Ann

> >

> > http://heartbeatsformito.org

> >

> >

> >

> >

> >

> > Ann (mito), mom to ( 4 ys) - asthma, seizures, tremors, milk

> > intolerance, reflux, ptosis, vision problems, gait problems, speech

> > variants, headaches, probable Strokelike episodes, suspected mito, and

> > to

> > our angel ^j^ Kate.

> >

> > Visit my page at: www.caringbridge.org/ms/anne02

> >

> >

> >

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> >

> > __________________________________________________

> >