Re: i have another question

August 5, 2008

Hi e,

This doesn't sound like sarcoidosis. It sounds like you've gotten in to something that is triggering an allergic reaction. The dry cough is right for sarcoidosis-- but the rest isn't.

I'd be getting it checked out

i have another question

hi everyone hope your week is going well. today has been a rough day since i woke up. i have been having the dry sarc cough since about 6:30 this morning. i took some cough medicine and did my inhalers this morning but nothing seems to help. after the first round with the cough i got a very red itchy sarcoidosis bump under my chin of all places. an i have two new little spots on my neck. the bad part about the cough is really wears me out and i'm getting pain in my shoulders. i don't mean to complain or sound winey. but i'm new to all of these symptoms. the good news is my white count is down a little .

if anyone can help me with these questions as of how to eleveate some of these symptoms. i'd greatly appreciate.

thanks so much martine

August 5, 2008

how can you tell the difference? i know i have been off my antibody infusions for a few weeks now. the first week after i got off of the antibody infusions i started getting the dry cough almost immediately . i guess i will have to try to get in my regular physician. all i want is to feel better. thanks tracie for the help.

Subject: Re: i have another questionTo: Neurosarcoidosis Date: Tuesday, August 5, 2008, 8:33 PM

Hi e,

This doesn't sound like sarcoidosis. It sounds like you've gotten in to something that is triggering an allergic reaction. The dry cough is right for sarcoidosis- - but the rest isn't.

I'd be getting it checked out

i have another question

hi everyone hope your week is going well. today has been a rough day since i woke up. i have been having the dry sarc cough since about 6:30 this morning. i took some cough medicine and did my inhalers this morning but nothing seems to help. after the first round with the cough i got a very red itchy sarcoidosis bump under my chin of all places. an i have two new little spots on my neck. the bad part about the cough is really wears me out and i'm getting pain in my shoulders. i don't mean to complain or sound winey. but i'm new to all of these symptoms. the good news is my white count is down a little .

if anyone can help me with these questions as of how to eleveate some of these symptoms. i'd greatly appreciate.

thanks so much martine

August 5, 2008

You were talking about the red itchy bumps that just came up out of the blue. This sounds more like hives than sarcoidosis. Generally, sarcoidosis doesn't come up as bumps-- but we do get a rash -- more the erthymous nodosum (sp) and it will cover large areas like the shins of your legs.

EN makes your skin cells look enlarged, and it generally painless-- sometimes it does make the small nerve fibres burn, and be very sensitive. But the itchy bumps that just come up-- that is hives. Have you had any different foods, used a different laundry detergent, or shampoo or hand lotion? How about fresh fruit or veges-- do you wash them before you eat them-- as allergic reactions can easily come from pesticide or fertilizers that can be on our foods.

Have you taken any herbal supplements or vitamins that you've not had previously?

These are all things to think about-- and can make a difference.

Hope this helps,

Tracie

NS Co-owenr/moderator

i have another question

hi everyone hope your week is going well. today has been a rough day since i woke up. i have been having the dry sarc cough since about 6:30 this morning. i took some cough medicine and did my inhalers this morning but nothing seems to help. after the first round with the cough i got a very red itchy sarcoidosis bump under my chin of all places. an i have two new little spots on my neck. the bad part about the cough is really wears me out and i'm getting pain in my shoulders. i don't mean to complain or sound winey. but i'm new to all of these symptoms. the good news is my white count is down a little .

if anyone can help me with these questions as of how to eleveate some of these symptoms. i'd greatly appreciate.

thanks so much martine

August 6, 2008

I have to agree that the bumps sound more like an allergic reaction

than sarc. However, sarc does sometimes present as small, hard

bumps, often red or purple in color. The bumps typically don't itch

but they may be very painful. I usually get these on my fingers,

head, eyes and neck (confirmed by biopsy)...hope you feel better

e.

>

> From: tracie feldhaus <tiodaat2001@ yahoo.com>

> Subject: Re: i have another question

> To: Neurosarcoidosis@ yahoogroups. com

> Date: Tuesday, August 5, 2008, 8:33 PM

>

> Hi e,

> This doesn't sound like sarcoidosis. It sounds like you've gotten

in to something that is triggering an allergic reaction. The dry

cough is right for sarcoidosis- - but the rest isn't.

> I'd be getting it checked out

>

> i have another question

>

> hi everyone hope your week is going well. today has been a rough

day since i woke up. i have been having the dry sarc cough since

about 6:30 this morning. i took some cough medicine and did my

inhalers this morning but nothing seems to help. after the first

round with the cough i got a very red itchy sarcoidosis bump under my

chin of all places. an i have two new little spots on my neck. the

bad part about the cough is really wears me out and i'm getting pain

in my shoulders. i don't mean to complain or sound winey. but i'm new

to all of these symptoms. the good news is my white count is down a

little .

> if anyone can help me with these questions as of how to eleveate

some of these symptoms. i'd greatly appreciate.

> thanks so much martine

>

August 6, 2008

I get itchy bumps, and they biopsied as sarc. Mine itch

like crazy, and are raised. I think there are lots of different kinds of skin sarc.

Michele

>>>hi everyone hope your week is

going well. today has been a rough day since i woke up. i have been having the

dry sarc cough since about 6:30 this morning. i

took some cough medicine and did my inhalers this morning but nothing seems to

help. after the first round with the cough i got a very red itchy sarcoidosis

bump under my chin of all places. an i have two new little spots on my neck. the

bad part about the cough is really wears me out and i'm getting pain in my

shoulders. i don't mean to complain or sound winey. but i'm new to all of these

symptoms. the good news is my white count is down a little .

if anyone can help me with these questions as of how to eleveate some of these

symptoms. i'd greatly appreciate.

thanks so much martine

August 6, 2008

hi Tony thanks for the advice. i appreciate. alot of this is all very very new to me. this is only my second year with sarcoidosis and i'm not being treated for it yet. hopefully i will be after i see the specialist in Michigan on August 20. i do have a red bump on the front area near my neck. all of my doctors have informed me that it is a sarcoidosis bump and the bumps i have been getting on my right arm are sarcoid related also. with having no immune system at all now and not even the antibody infusions anymore i'm prone to alot of things now. i really feel for the doctors who get me as their patient because i'm always the challenge. lol

sincerely martine

Subject: Re: i have another questionTo: Neurosarcoidosis Date: Wednesday, August 6, 2008, 12:38 PM

I have to agree that the bumps sound more like an allergic reaction than sarc. However, sarc does sometimes present as small, hard bumps, often red or purple in color. The bumps typically don't itch but they may be very painful. I usually get these on my fingers, head, eyes and neck (confirmed by biopsy)...hope you feel better e.> > From: tracie feldhaus <tiodaat2001@ yahoo.com>> Subject: Re: i have another question> To: Neurosarcoidosis@ yahoogroups. com> Date: Tuesday, August 5, 2008, 8:33 PM> > > Hi e,> This doesn't sound like sarcoidosis. It sounds like you've gotten in to something that is triggering an allergic reaction. The

dry cough is right for sarcoidosis- - but the rest isn't.> I'd be getting it checked out> > > > i have another question> > > hi everyone hope your week is going well. today has been a rough day since i woke up. i have been having the dry sarc cough since about 6:30 this morning. i took some cough medicine and did my inhalers this morning but nothing seems to help. after the first round with the cough i got a very red itchy sarcoidosis bump under my chin of all places. an i have two new little spots on my neck. the bad part about the cough is really wears me out and i'm getting pain in my shoulders. i don't mean to complain or sound winey.

but i'm new to all of these symptoms. the good news is my white count is down a little .> if anyone can help me with these questions as of how to eleveate some of these symptoms. i'd greatly appreciate. > thanks so much martine>

August 6, 2008

I get those red bumps on my face and neck, too, but they eventually go away. Most of the time it's best just to leave them alone or you'll just make them worse. Don't itch them. Mine are usually quite painful to the touch. I have to keep the humidity high for my lungs and so my throat doesn't dry up and makes the coughing worse. I also suffer from dry mouth. I have three small fans where you put water in them and then the fan sends cooler air out but the air is also more moisturized. Sarc and some meds dry the throat out. I also use Biotene products for dry mouth. That also helps with dryness. And i chew a lot of sugar free gum to keep the salivary glands working better. Sugar free candies

also help coat the throat and relieve dryness. I also have trouble swallowing at times. It's sarc and the dryness... so drink up! Lots and lots of water. Hang in there and take care of yourself. S. 29:11, For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future. "If anyone would come after Me, he must deny himself" ( 16:24 NIV).Subject: Re: i have another questionTo: Neurosarcoidosis Date: Wednesday, August 6, 2008, 12:38 PM