when to let them say enough

[Guest guest]

I have daughter with the MEALS form of mito.

She is doing really well now, but we have

had some really iffy days. She has trouble

eating w/o choking, walking distance, ADHD,

seziures some with stroke like symptoms.

She drinks 3-4 cans of pedisure aday but

is starting to rebel at all attempts to

keep her healthy. We try to adapt every thing

so that she can go with her sisters and friends.

If you have a child with these issues we would

love to hear how you deal with them becoming

thier own person but still keeping them safe.

She is our little angle with a tilted halo.

Kathy

e's mom