Re: Question - long-term use of Dulcolax

[Guest guest]

Dear Anne:

We use Bisacodyl (generic of Dulcolax) suppositories every day for Seth

(he's 13). This was prescribed by a pediatric motility doctor. I

asked about long term problems and he had said they use this for a lot

of kids long term without problems. It works for Seth and we haven't

had any resistance. It's been almost three years of daily use now.

For him, it was our last effort prior to cecostomy. Hope the cecostomy

works using this method.

Cindy (Mom to Seth and Ben, both mito)

> Hi all,

>

> Just a quick question if any of you have any experience with this

issue

> in terms of motility and your children.

[Guest guest]

Hi

Thank you for you question becouse we are having problems geting e to have BMs. The doctor thought that she was just not drinking enough or eating enough fiber. She also stated that she didnt think her mito had anything to do with her not having a bm. e will go once a week with out help.

Thank you for opening my eyes

Kathy e's mom AReckling@... wrote:

Hi all,Just a quick question if any of you have any experience with this issue in terms of motility and your children. Asher just had a cecostomy tube surgically placed to irrigate his colon (his motility was so severe he could not have a bm and we had gone through multiple meds - miralax, zelnorm, reglan, etc.). The tube does not work with Fleet and saline like for many kids, but seems to work really well with saline and crushed Dulcolax tablets (per doctor's orders). I'm planning on asking the drs on Monday about the long-term use of Dulcolax but I"m curious as to what if anything, you all have heard. Everything I read says that you can't use Dulcolax long-term, but, then again, we are dealing with severe dysmotility caused by mito so it's a different ball game.Any experience?Anne Rmom to Asher (4 years

old, Mito - Complex III defect, partial Complex I defect)Please contact mito-owner with any problems or questions. Send instant messages to your online friends http://uk.messenger.yahoo.com

[Guest guest]

Anne,

Lucas is on daily milk of magnesia over here. I too

am concerned that if that doesn't work what next. Our

GI basically said we would just have to increase the

dose. Regular glycerin suppositories became

ineffective for him and miralax no longer was working

also. Erythromycin worked until he had an allergic

reaction to it. We are on Mestinon for Lucas'

motility but am concerned since his milk of mag has

not produced any results for him going on day 4. Will

find out if it worked when I go pick him up from

school.

Not sure about dulcolax but it is a bowel stimulant

just as milk of mag. is.

HTH, Loriann- mom to and 12.5 yr old twins

and Lucas 9 yrs old with nonspecific mito, LCHAD,

hypothyroidism, ataxia, seizures, J-J tube fed, G-tube

vented, GERD, slow motility, global developmental

delay, cortical visual impairment, etc.

--- AReckling@... wrote:

>

> Hi all,

>

> Just a quick question if any of you have any

> experience with this issue

> in terms of motility and your children. Asher just

> had a cecostomy tube

> surgically placed to irrigate his colon (his

> motility was so severe he

> could not have a bm and we had gone through multiple

> meds - miralax,

> zelnorm, reglan, etc.). The tube does not work with

> Fleet and saline

> like for many kids, but seems to work really well

> with saline and

> crushed Dulcolax tablets (per doctor's orders). I'm

> planning on asking

> the drs on Monday about the long-term use of

> Dulcolax but I " m curious

> as to what if anything, you all have heard.

> Everything I read says that

> you can't use Dulcolax long-term, but, then again,

> we are dealing with

> severe dysmotility caused by mito so it's a

> different ball game.

>

> Any experience?

>

> Anne R

> mom to Asher (4 years old, Mito - Complex III

> defect, partial Complex I

> defect)

>

>

>