Re: neuro.

[Guest guest]

My husband was just diagnosised one month ago. Thanks for your email.

It is the first sign of hope I have recieved since joining. He is on 8

mg of decadron a day. He is going crasy because there is no sleep.

Anyone have any luck with getting sleep. He already takes ambien and

xanax. How long before they start cutting down on the steriods. He is

starting Remicaid but has to miss his next infusion because of a virus.

Is ther hope for some kind of normal life.

Dana

>

> i have neuro. it took 7 yrs. to diagnose what i have after a biopsy.

in

> certain ways i feel lucky because things could be worse. my symptoms

> were blurry vision, slurred speech, numbness in face, arms & hands,

> confusion, loss sense or direction, loss of memory, headaches. the

good

> news is ive gone from 60mg prednisone daily to 20 mg. lost 45lbs. and

> have a little stamina.to all of you out there my prayers are with you

> all. but remember without God there's no strength without stregnth

> there's no victory. stay strong!

>

> Royce

>

[Guest guest]

Hi Royce,

I am glad that you are feeling better. It provides hope

for everyone. I had a question if you don't mind. Since

it took so long for them to diagnose you, what other

diagnosis' did you receive? That must have been a tough

7 yrs. not knowing...

Debbie

Co-Moderator

>

> i have neuro. it took 7 yrs. to diagnose what i have after a biopsy.

in

> certain ways i feel lucky because things could be worse. my symptoms

> were blurry vision, slurred speech, numbness in face, arms & hands,

> confusion, loss sense or direction, loss of memory, headaches. the

good

> news is ive gone from 60mg prednisone daily to 20 mg. lost 45lbs. and

> have a little stamina.to all of you out there my prayers are with you

> all. but remember without God there's no strength without stregnth

> there's no victory. stay strong!

>

> Royce

>