Re: Question - long-term use of Dulcolax/Cindy

[Guest guest]

Dear Anne, We flew in to Milwaukee to see Dr. Rudolph at Children's.

He had motility testing. The motility testing didn't actually show a

motility problem in his upper or his lower intestines. However, he has

a rectal neuropathy (lack of feeling and proper function). He was

requiring frequent hospitalizations for golytely cleanouts. He has had

what are probably cyclic vomiting or pseudo obstructions before

requiring hospitalizations, but has never required a g tube. Dr.

Rudolph recommended the suppositories before breakfast, then a toilet

sitting time after breakfast. Usually this prevents any accidents

(can't always control or stop them when they happen. And, as far as I

know he is not constipated or backed up. We went from using 3

laxatives orally per day to just using the suppositories which is much

better. Before we went to that, we were using enemas, but they did not

evacuate anything higher than the rectum. Then during the day as

things moved down, that was the problem. Now the bisacodyl stimulates

the whole colon. So, whatever moves down during that time, will come

out. It's saved him from having the cecostomy. Not to say that won't

happen at sometime if the motility/neuropathy worsens. I'm glad the

cecostomy is working now for Asher.

Cindy

> Cindy,

>

> Thanks so much for your reply. I'm impressed that your son will

handle

> the suppositories without a problem and that it works so well. Who do

> you see for motility issues? Is he on a g tube? Asher has been g

tube

> fed for over a year now b/c of such motility problems. When did they

> start having these problems?

>

> The cecostomy is working great now that we are putting the crushed

> Dulcolax tablets directly into his cecostomy tube.

>

> Anne R