Question - long-term use of Dulcolax

[Guest guest]

Hi all,

Just a quick question if any of you have any experience with this issue

in terms of motility and your children. Asher just had a cecostomy tube

surgically placed to irrigate his colon (his motility was so severe he

could not have a bm and we had gone through multiple meds - miralax,

zelnorm, reglan, etc.). The tube does not work with Fleet and saline

like for many kids, but seems to work really well with saline and

crushed Dulcolax tablets (per doctor's orders). I'm planning on asking

the drs on Monday about the long-term use of Dulcolax but I " m curious

as to what if anything, you all have heard. Everything I read says that

you can't use Dulcolax long-term, but, then again, we are dealing with

severe dysmotility caused by mito so it's a different ball game.

Any experience?

Anne R

mom to Asher (4 years old, Mito - Complex III defect, partial Complex I

defect)