Guest guest Posted August 28, 2008 Report Share Posted August 28, 2008 Dana I believe each case is a little different. I have NS, for 3 years now. I am just starting to walk though clumsy as I am. My NS affected the right side of my body and is now only in the lower half. I do have feeling and control of my limbs however most of the time I can't tell where my feet are. I know they are at the bottom of my legs. lol I still get a little dizzy but take Meclazine (sp) as I need it. I have had my Prednisone lowered to 5 mg a day and they are going to try and take me off all together. I do take plaquinel and Methotrexate. I hope for a normal life too but who knows what normal is anymore. The best I believe I will have is as active as I can get. I walk, with walker, I sometimes use a wheelchair. I drive and do everything by myself. I feel blessed because I am here and able to try to improve. I was a biker babe and I know I will never ride again unless I get an expensive 3 wheeler. Who knows. You will adapt and hopefully your husband will become stronger. I pray he does. Just don't give up. Jackie from Wisconsin. [sPAM] Re: neuro. My husband was just diagnosised one month ago. Thanks for your email. It is the first sign of hope I have recieved since joining. He is on 8mg of decadron a day. He is going crasy because there is no sleep. Anyone have any luck with getting sleep. He already takes ambien andxanax. How long before they start cutting down on the steriods. He isstarting Remicaid but has to miss his next infusion because of a virus. Is ther hope for some kind of normal life.Dana>> i have neuro. it took 7 yrs. to diagnose what i have after a biopsy.in> certain ways i feel lucky because things could be worse. my symptoms> were blurry vision, slurred speech, numbness in face, arms & hands,> confusion, loss sense or direction, loss of memory, headaches. thegood> news is ive gone from 60mg prednisone daily to 20 mg. lost 45lbs. and> have a little stamina.to all of you out there my prayers are with you> all. but remember without God there's no strength without stregnth> there's no victory. stay strong!>> Royce> Quote Link to comment Share on other sites More sharing options...
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