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Hi Terri,

I'm starting at the bottom

of my emails and going up, so this is a late response, how did you come about

going on cytoxan? So far the Remicade is a no go, we are awaiting final word

on the final appeal from the insurance company, even the drug company told us

No, so time to research new drugs, so just wondering why your doctor picked

this drug? Thanks Marla

From:

Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of mosaicgirl1

Sent: Thursday, May 15, 2008 8:15

PM

To:

Neurosarcoidosis

Subject: misc

First

of all - Tracie - I was wondering when we were going to get busted for the

religious topics. At least we put a warning on it huh? I will have

to remember the chat room. I always forget about it but will be mindful

of others from now on.

Second

- I just wanted to let you guys know, I am starting my first cytoxan treatment

tomorrow! Yeah! Woohoo! Yippee! I really feel like I am

starting to get somewhere now Baby. My mother-in-law is picking me up at

6:00 am; we are going to breakfast, then the fresh market then 6 hours of

treatment. After that, I am going to be treated like the Queen the rest

of the weekend. I am going to milk it for everthing I can.

To

all whose Birthday's I may have missed, Happy Belated Birthday. It has

been a busy month and I am not sure who I have missed.

Well,

gotta go clean up as much as I can. I don't want to sit around a dirty

house if I am not feeling great.

Love

to all.....

Terri

G.

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Guest guest

Terri,

I hope you are feeling

better now, did you feel better on the day of the treatment or no difference,

it's too bad you have to have N/V with it. Hope you are better! Marla

From:

Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of mosaicgirl1

Sent: Sunday, May 18, 2008 4:16 AM

To:

Neurosarcoidosis

Subject: Re:

misc

,

The treatment went well but today wasn't that great. Woke up vomiting

every 15 minutes....finally got so zofran on board and now I am just

tired.

Thanks for everything.

Terri G.

>

> good luck with your treatment tomorrow Terri...I'll be praying for

you...hugs

>

> Many Blessings and pain free day

> love to " ALL "

>

>

>

>

> **************Wondering what's for Dinner Tonight? Get new twists on

family

> favorites at AOL Food.

> (http://food.aol.com/dinner-tonight?NCID=aolfod00030000000001)

>

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Guest guest

Marla,

My rheumatologist decided on it. It is used for NS, MS, Lupus - a lot

of autoimmune disease. Sorry you haven't been approved yet.

Terri

>

> Hi Terri,

>

> I'm starting at the bottom of my emails and going up, so this is a

late

> response, how did you come about going on cytoxan? So far the Remicade

is a

> no go, we are awaiting final word on the final appeal from the

insurance

> company, even the drug company told us No, so time to research new

drugs, so

> just wondering why your doctor picked this drug? Thanks Marla

>

>

>

> _____

>

> From: Neurosarcoidosis

> [mailto:Neurosarcoidosis ] On Behalf Of mosaicgirl1

> Sent: Thursday, May 15, 2008 8:15 PM

> To: Neurosarcoidosis

> Subject: misc

>

>

>

> First of all - Tracie - I was wondering when we were going to get

busted

> for the religious topics. At least we put a warning on it huh? I will

have

> to remember the chat room. I always forget about it but will be

mindful of

> others from now on.

>

> Second - I just wanted to let you guys know, I am starting my first

cytoxan

> treatment tomorrow! Yeah! Woohoo! Yippee! I really feel like I am

> starting to get somewhere now Baby. My mother-in-law is picking me up

at

> 6:00 am; we are going to breakfast, then the fresh market then 6 hours

of

> treatment. After that, I am going to be treated like the Queen the

rest of

> the weekend. I am going to milk it for everthing I can.

>

> To all whose Birthday's I may have missed, Happy Belated Birthday. It

has

> been a busy month and I am not sure who I have missed.

>

> Well, gotta go clean up as much as I can. I don't want to sit around a

> dirty house if I am not feeling great.

>

> Love to all.....

> <http://www.smileycentral.com/?partner=ZSzeb001_ZSYYYYYYJJUS> Heart

Glasses

>

> Terri G.

>

>

>

>

>

>

>

<http://smiley.smileycentral.com/download/index.jhtml?partner=ZSzeb113_Z\

SYYY

> YYYJJUS & utm_id=7921>

>

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Guest guest

Marla,

I am lots better and even went for a bike ride with my husband yesterday

(tandem bike). had to rest today but that was the first time in almost

a year I felt like it. Thanks for the good wishes.

Terri

> >

> > good luck with your treatment tomorrow Terri...I'll be praying for

> you...hugs

> >

> > Many Blessings and pain free day

> > love to " ALL "

> >

> >

> >

> >

> > **************Wondering what's for Dinner Tonight? Get new twists on

> family

> > favorites at AOL Food.

> > (http://food.

> <http://food.aol.com/dinner-tonight?NCID=aolfod00030000000001>

> aol.com/dinner-tonight?NCID=aolfod00030000000001)

> >

>

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  • 2 months later...

Good Morning,

To those who wrote back regarding my " absence " thank you so much. To

, congratulations. I have always wanted to go to Egypt (such an

ancient place). Take lots of photos so you can post some in the photos

section. That way, we can feel like we went with you.

To all of my other friends, I wish and pray for you the best day

possible. I am always thinking of you.

Terri G.

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