Guest guest Posted May 26, 2008 Report Share Posted May 26, 2008 Hi Terri, I'm starting at the bottom of my emails and going up, so this is a late response, how did you come about going on cytoxan? So far the Remicade is a no go, we are awaiting final word on the final appeal from the insurance company, even the drug company told us No, so time to research new drugs, so just wondering why your doctor picked this drug? Thanks Marla From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of mosaicgirl1 Sent: Thursday, May 15, 2008 8:15 PM To: Neurosarcoidosis Subject: misc First of all - Tracie - I was wondering when we were going to get busted for the religious topics. At least we put a warning on it huh? I will have to remember the chat room. I always forget about it but will be mindful of others from now on. Second - I just wanted to let you guys know, I am starting my first cytoxan treatment tomorrow! Yeah! Woohoo! Yippee! I really feel like I am starting to get somewhere now Baby. My mother-in-law is picking me up at 6:00 am; we are going to breakfast, then the fresh market then 6 hours of treatment. After that, I am going to be treated like the Queen the rest of the weekend. I am going to milk it for everthing I can. To all whose Birthday's I may have missed, Happy Belated Birthday. It has been a busy month and I am not sure who I have missed. Well, gotta go clean up as much as I can. I don't want to sit around a dirty house if I am not feeling great. Love to all..... Terri G. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2008 Report Share Posted May 26, 2008 Terri, I hope you are feeling better now, did you feel better on the day of the treatment or no difference, it's too bad you have to have N/V with it. Hope you are better! Marla From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of mosaicgirl1 Sent: Sunday, May 18, 2008 4:16 AM To: Neurosarcoidosis Subject: Re: misc , The treatment went well but today wasn't that great. Woke up vomiting every 15 minutes....finally got so zofran on board and now I am just tired. Thanks for everything. Terri G. > > good luck with your treatment tomorrow Terri...I'll be praying for you...hugs > > Many Blessings and pain free day > love to " ALL " > > > > > **************Wondering what's for Dinner Tonight? Get new twists on family > favorites at AOL Food. > (http://food.aol.com/dinner-tonight?NCID=aolfod00030000000001) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2008 Report Share Posted May 27, 2008 Marla, My rheumatologist decided on it. It is used for NS, MS, Lupus - a lot of autoimmune disease. Sorry you haven't been approved yet. Terri > > Hi Terri, > > I'm starting at the bottom of my emails and going up, so this is a late > response, how did you come about going on cytoxan? So far the Remicade is a > no go, we are awaiting final word on the final appeal from the insurance > company, even the drug company told us No, so time to research new drugs, so > just wondering why your doctor picked this drug? Thanks Marla > > > > _____ > > From: Neurosarcoidosis > [mailto:Neurosarcoidosis ] On Behalf Of mosaicgirl1 > Sent: Thursday, May 15, 2008 8:15 PM > To: Neurosarcoidosis > Subject: misc > > > > First of all - Tracie - I was wondering when we were going to get busted > for the religious topics. At least we put a warning on it huh? I will have > to remember the chat room. I always forget about it but will be mindful of > others from now on. > > Second - I just wanted to let you guys know, I am starting my first cytoxan > treatment tomorrow! Yeah! Woohoo! Yippee! I really feel like I am > starting to get somewhere now Baby. My mother-in-law is picking me up at > 6:00 am; we are going to breakfast, then the fresh market then 6 hours of > treatment. After that, I am going to be treated like the Queen the rest of > the weekend. I am going to milk it for everthing I can. > > To all whose Birthday's I may have missed, Happy Belated Birthday. It has > been a busy month and I am not sure who I have missed. > > Well, gotta go clean up as much as I can. I don't want to sit around a > dirty house if I am not feeling great. > > Love to all..... > <http://www.smileycentral.com/?partner=ZSzeb001_ZSYYYYYYJJUS> Heart Glasses > > Terri G. > > > > > > > <http://smiley.smileycentral.com/download/index.jhtml?partner=ZSzeb113_Z\ SYYY > YYYJJUS & utm_id=7921> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2008 Report Share Posted May 27, 2008 Marla, I am lots better and even went for a bike ride with my husband yesterday (tandem bike). had to rest today but that was the first time in almost a year I felt like it. Thanks for the good wishes. Terri > > > > good luck with your treatment tomorrow Terri...I'll be praying for > you...hugs > > > > Many Blessings and pain free day > > love to " ALL " > > > > > > > > > > **************Wondering what's for Dinner Tonight? Get new twists on > family > > favorites at AOL Food. > > (http://food. > <http://food.aol.com/dinner-tonight?NCID=aolfod00030000000001> > aol.com/dinner-tonight?NCID=aolfod00030000000001) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2008 Report Share Posted August 25, 2008 Good Morning, To those who wrote back regarding my " absence " thank you so much. To , congratulations. I have always wanted to go to Egypt (such an ancient place). Take lots of photos so you can post some in the photos section. That way, we can feel like we went with you. To all of my other friends, I wish and pray for you the best day possible. I am always thinking of you. Terri G. Quote Link to comment Share on other sites More sharing options...
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