Newly diagnosed

[Guest guest]

> I have recently been diagnosed with graves disease. I am a 46 year

> old mum with 3 teenage sons. I work as a theatre sister, and feel

> pretty grotty right now!

>

> PS - I have been on the chat room many times but there has never

> been anyone there. Is there a certain time when people go on, or has

>

> it just been quiet when I've visted?

Am I correct in assuming you live to the east of the pond? That may be a

factor as far as the quiet goes.

Congrats for getting on ATDs and best wishes that you are managed

properly - you'll learn a lot about that here.

Take care, Fay

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[Guest guest]

Hi. My daughter Sophia who is 11 months old was just diagnosed as

Complex I, III, and IV deficiency. Her neurologist wants to start her

on the " mito cocktail. " It will be carnitor, Co-Q10, B-1, B-2. She

also takes Cyproheptadine for help with migraines. I was wondering if

anyone's children had any problems tolerating any of the " ingredients "

of the cocktail.

Thanks

Meagan

Mom to Sophia (11 months) - GERD (despite nissen), hypotonia,

developmental delays, asthma, migraines, partial g-tube fed, muscle pain

[Guest guest]

Im sorry to hear about your daughter!

My son is 2 and has complex 1 deficiency. He was started on the

cocktail (carnitor, coQ10, B1, B2, E and C) in January, and weve had a

bit of a ride with it... initially he had severe diharrhea, but we

think it was because we started him on it way too fast (all at once,

full doses). So we took him off in Feb, and slowly introduced... we

rushed it again (one at a time, but still full doses) and he got

diharrhea again, so we started over again 2 weeks ago. Hes now on the

CoQ10 full dose, and were just starting with Vitamin C at a half

dose... so far so good! We are definately seeing an improvement in

his energy levels!

How is your daughter affected?

Keely (mom to , 28 months, Complex 1, and Tyler, 8 weeks)

>

>

> Hi. My daughter Sophia who is 11 months old was just diagnosed as

> Complex I, III, and IV deficiency. Her neurologist wants to start

her

> on the " mito cocktail. " It will be carnitor, Co-Q10, B-1, B-2. She

> also takes Cyproheptadine for help with migraines. I was wondering

if

> anyone's children had any problems tolerating any of

the " ingredients "

> of the cocktail.

>

> Thanks

> Meagan

>

> Mom to Sophia (11 months) - GERD (despite nissen), hypotonia,

> developmental delays, asthma, migraines, partial g-tube fed, muscle

pain

[Guest guest]

My 2yo started the cocktail at the age of 4mos and really had no

problems tolerating anything. Right now our only problems are getting

her to take the CoQ10- she hates the way it tastes-- and it is so oily

that it sometimes makes her gag. On the other hand- we noticed

improvements IMMEDIATELY with the cocktail!!

le and 2yo Lea living with partial complex 1

and 6 other very healthy kiddos

>

>

> Hi. My daughter Sophia who is 11 months old was just diagnosed as

> Complex I, III, and IV deficiency. Her neurologist wants to start

her

> on the " mito cocktail. " It will be carnitor, Co-Q10, B-1, B-2. She

> also takes Cyproheptadine for help with migraines. I was wondering

if

> anyone's children had any problems tolerating any of

the " ingredients "

> of the cocktail.

>

> Thanks

> Meagan

>

> Mom to Sophia (11 months) - GERD (despite nissen), hypotonia,

> developmental delays, asthma, migraines, partial g-tube fed, muscle

pain