Re: partial seizures?

[Guest guest]

,

Leighann is usually really off when she starts having the seizures. She has

tremors, and they get really

bad, the balance is way off, her appetite, she gets very clingy, her

concentration is gone. Usually

this comes right before and during a sickness, but our last episode just

happened with no sickness.

I usually call her neuro, they adjust her meds, or sometimes just say to

watch her. Not much help,

but if you're thinking it might be time for the meds to be upped, then call

the doctor with the recent

problems. I wish you the best with , it's no fun to have to do guess

work and to see them down.

Lois

> [Original Message]

>

> To: <Mito >

> Date: 4/17/2005 3:56:53 AM

> Subject: partial seizures?

>

>

>

> Hello Everyone,

>

> The last few days I've really been watching pretty close, he

> hasn't seemed like himself. Yesterday he was having such a hard time

> walking, his legs kept buckling under him. His physical therapist

> said he was worse than the week before. Then this morning when I

> went to give him his Tegretol and Topamax he was having a seizure.

> He has the partial seizures that only affect the right side of his

> body. I have noticed him having more than normal lately and am

> wondering if this may be why he has had a harder time walking the

> last few days. Does anyone else have this? Usually only after the

> big seizures does it take him awhile to get back to baseline, so I'm

> a little concerned that we may need to increase meds again. He has

> been very pale the last week and his energy has come in spurts. I

> HATE SEEING HIM LIKE THIS!!! I am grateful that we are not in the

> hospital or any thing like that.

> Luckily we get to see the GI doc this week and I'm counting the days

> now (8) until we see Dr. Saneto who is I guess the mito specialist in

> Seattle. He should have our muscle biopsy results by now. It was

> done on Jan. 26th. Please pray for us that they are in.

> Sorry this is so long I just needed to write. So much going on right

> now.

>

> Thanks for listening,

>

>

>

>

>

>

> Please contact mito-owner with any problems or questions.

>

[Guest guest]

My 2yo has been seizure free now for 17mos!!!! but when she did have

seizures, even the smallest ones would take her at least a week to

fully recover from. Even the ones that last 15seconds seemed almost

devestating to her- she was having partial seizures as well.

le and 2yo Lea living with partial complex 1

and 6 other very healthy kiddos

>

> Hello Everyone,

>

> The last few days I've really been watching pretty close,

he

> hasn't seemed like himself. Yesterday he was having such a hard

time

> walking, his legs kept buckling under him. His physical therapist

> said he was worse than the week before. Then this morning when I

> went to give him his Tegretol and Topamax he was having a

seizure.

> He has the partial seizures that only affect the right side of his

> body. I have noticed him having more than normal lately and am

> wondering if this may be why he has had a harder time walking the

> last few days. Does anyone else have this? Usually only after

the

> big seizures does it take him awhile to get back to baseline, so

I'm

> a little concerned that we may need to increase meds again. He

has

> been very pale the last week and his energy has come in spurts. I

> HATE SEEING HIM LIKE THIS!!! I am grateful that we are not in the

> hospital or any thing like that.

> Luckily we get to see the GI doc this week and I'm counting the

days

> now (8) until we see Dr. Saneto who is I guess the mito specialist

in

> Seattle. He should have our muscle biopsy results by now. It was

> done on Jan. 26th. Please pray for us that they are in.

> Sorry this is so long I just needed to write. So much going on

right

> now.

>

> Thanks for listening,