Guest guest Posted March 25, 2005 Report Share Posted March 25, 2005 I have posted here many times before. My daughter Kierra is 9 and has all 5 complexes and metabolic disorder. She is still on TPN via mediport and had another g tube placed on the 24th of Feb. I just feel so lost with her. She is up and down all the time. She had 2 weeks were I almost forgot that she was sick and out of no where she just turned around and started not eatting much, drinking, and weak, just same ole stuff. I get so sick of calling the doctors. How do you all do this. Kierra has not been in school this year. So we are together 24/7. She will be 10 in Aug. and holds on to about 54.lbs. She wants to be normal, play and do what all the other kids do. But she just can't. I would love to start a local support group where parents could meet and talk. I live in Houston Pa. About 25 miles outside of Pittsburgh. If anyone in this group is close, please contact me. I need someone who understands. Thank you Quote Link to comment Share on other sites More sharing options...
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