Re: Re: Behavior issues can you help? PLEASE.......... Thanks

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Dear Donna, Thank you for your prayers and support. My daughter does get the girls on some weekends. The video tape idea is great but it failed for us because it just confirmed to the father and the court that such behavior exists in the mothers care and the father and his family continue to deny it happens in their home. You see, the father lives with parents. All of them lie. The 10 year old in the house sees everything and has told everyone who will listen that the same behavior happens at both houses. But the father calls it a tantrum and physically disciplines her. When she is scared enough or hurt enough the screaming episode turns to a crying episode and he calls that behavior modification. What a joke. .The 5 year old often (several times) has had deep bruises on her bottom and the clear shape of a wooden spoon his paddle of choice.craigsstory wrote:

Dear ,I don't think I can offer any help, but I want to offer my prayers. I am so, so sorry for all that your daughter, grand daughter and you are going through. It is unbelievable!Where is this court case? Has anyone come forward to testify on her behalf? My son does not have self-abusive behavior, although definite behavior problems, seizures, ataxia, strabismus (the eye problem your grand daughter has I think). It did take me a very long time to convince doctors that something was really wrong. I wish your daughter could videotape her. That's what finally worked for me. Does she have time with her alone to do this? It is tricky to catch things on video, though, and I know time is running out. I will pray for your all.Donna Mom to Craig 8 (unspecified

mito) and Dalton (possible mito)Mito , brenda h <b_g_hudson@y...> wrote:> Yes we have considered seizure activity. However we can not do anything at this point because she is with her father right now. He denies the behaviors in his care. And the EEG that showed some possible activity which would cause such behaviors has been ignored by the courts. What I am absolutely hoping for is someone who experiences these behaviors with their child to be able to share it with the courts to show that it does really happen. Perhaps if the jury can hear some one telling of the same things happening with their child that my daughter tells of happening with her child then maybe they will listen. The hard hearted lying of this childs father is so unbelievable. He just wants to WIN, has no regard for his child.Our court system sucks. This father has money and an

attorney oin the family and he is able to do all of this. Mito just makes it all easy for him to do. My daughter comes off looking like a lunatic. This father lies that there are no behavior issues in> his care. The 10 year old in the house has told the courts differently, but since it is unfamiliar it must be made up. CPS is a joke. They believe the fathers lies. We are running out of time. We have proof of child abuse, domestic abuse before the divorce and proof that the fathers attorney has contacted doctors threatening mal practice and mentioning Munchausen. The doctors duck their tails and refuse to see my grand daughter. Not a one of them has stood up to the threats of maol practice. No one wants to get involved. I asked the UMDF if there was a parent advocate or representative who could go to court, or even be deposed by phone or in person,

to speak on general terms about children with compex III, or any mito, and the presence of behaviors like my grand daughters. She hurts herself, she crossed her eyes and had to have surgically corrected even while the father was still in the house. She pulls her hair out by the hand fulls. She bits, scratches, butts her head,> and flails. Her eyes become different, like maybe larger pupils. She wont respond to anything. She can be frightened out of one of these episodes. Once I saw her father hold his hand over her mouth to keep her from being heard and she finally stopped screaming and her eyes bugged out with fear. When he moved his hand she was crying Only....no screamiing. We are in serious need of help. Perhaps if we could find someone who could tell their childs story maybe the court would listen.> > VisibleWorship@a... wrote:In a message dated

4/14/2005 11:03:29 P.M. Central Standard Time, b_g_hudson@y... writes:> She still bangs her head, scratches herself, pulls her hair out. Her eyes look so weird, like she isn't there. Someone a couple of weeks ago discribed their child as having enlarged pupils > > have you considered seizure activity in the frontal lobe? EEG's aren't always perfect but that was how my 's weird behavior was explained and it made sense. He did show some activity in the frontal lobe but we were never able to define the specific type of siezure. However, you might consider having your neuro try her on some anti=seiz meds, just in case. Our other son, who has high functioning autism (not blood related=not mito related), takes them for behavior even though he doesn't have seizures, so I would give it a try. Tergretol worked for both of my boys and then added Neurontin later when the

dementia got so bad and caused weird behaviors...we saw a great improvement. Neurontin also works for neuropathic pain, which could be pain she is having but doesn't know how to tell you...sometimes that causes behavior too. A lot of Mito kids have had good success with Neurontin. > > > deb...mom to four great kids and wife to one amazing guy!> www.LifeofLoveProject.org> www.debwells.com> > > > Please contact mito-owner with any problems or questions. > > > > --------------------------------->