Re: -all- Another bad hospital experience-but home

[Guest guest]

One doc mentioned the possibility of stroke activity but since it seems more

likely a nerve problem no MRI of the brain was performed. I think it

unlikely as well, but am frustrated the anesthesiologists put me in the

predicament they did. They really down-played the lactate ringer issue

saying they could put anyone on them for a couple of days without even

making a slight increase in the lactate level. Lots of covering up was

being done and excuse making and a few apologies as well. Either way, I am

dealing with the end product and hope it will all get better with time. It

is just frustrating that we did EVERYTHING possible to avoid complications

just to have it all ignored and having problems as a result.

See www.caringbridge.org/ia/mitomomof9 and www.heartbeatsformito.org to see

a photo look into what Mito looks like

Darla: mommy to

Asenath (5) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomia, SID, global delays, asthma, cyclic vomiting,

bladder issues, wheelchair for distances, eye issues, autistic behaviors,

gastric emptying issues...

Zipporrah (17 months) Mito, strokes, neuro-motor planning dys., SID, GERD,

dysphasia, 100% G-tube fed, speech delays, extreme fatigue, excessive

phlegm, asthma, trach issues, aberrant subclavian artery, disautonomia,

hypertonicity, migraines, possible seizures, dumping syndrome, iron

deficiency...

Luke (16)migraines, sensory issues, & some evidence of SLE's...

Leah (14), Rachael (13), Isaac (11), Tirzah (8), Kezia (4),

Marquis (3) prenatal drug & alcohol exposure with likely FAS, behavioral

issues, SID...

Joey (15 months) with hydrocephalus, dysgenesis of the corpus callosum,

encephalomalacia & leukomalacia, possible arachnoid cyst,

Re: Another bad hospital experience-but home

>

>

> Darla,

>

> I'm sorry about your experience. Sounds terrible. Very dangerous. The last

> time our was put under I insisted upon talking to the

> anestesiologist

> who was doing the procedure. I gave a list of conditions that must be met.

> I

> told her before they took away. I gave her the article by Bruce

> Cohen

> about the extra precautions needed for mito. She got huffy with me and

> said

> that he wasn't even an anesthesiologist. But... I made them use MH

> precautions (have to flush all lines) and I list lactated ringers as an

> allergy for

> all my kids and me.

>

> Darla, did you have a metabolic stroke? Did you talk to Dr. Whiteman about

> this? I would call him on Monday if you haven't.

>

>

>

>

>

>

>

>

>

>

>

> Please contact mito-owner with any problems or questions.

>

[Guest guest]

Darla,

I am so sorry to hear that your experience was so bad. I will pray for

a speedy and complete recovery. My oldest had his tonsils and adenoids

taken out between Christmas and New Years (in 2003), and I thought I

covered all of the bases with the anesthesiologist only to discover

that the recovery room nurse changed his IV bag and used lactated

ringers. had his first episode of urinary retention shortly after

the procedure. He was also taking tylenol with codeine and it really

depletes glutathione which is the main antioxidant that quenches all of

the oxidative stress from oxphos in the mitochondria.

Darla Klein wrote:

One doc mentioned the possibility of stroke activity but since it seems

more

likely a nerve problem no MRI of the brain was performed. I think it

unlikely as well, but am frustrated the anesthesiologists put me in the

predicament they did. They really down-played the lactate ringer issue

saying they could put anyone on them for a couple of days without even

making a slight increase in the lactate level. Lots of covering up was

being done and excuse making and a few apologies as well. Either way,

I am

dealing with the end product and hope it will all get better with

time. It

is just frustrating that we did EVERYTHING possible to avoid

complications

just to have it all ignored and having problems as a result.

[Guest guest]

> One doc mentioned the possibility of stroke activity but since it seems more

> likely a nerve problem no MRI of the brain was performed.

Darla, I'm not sure that a metabolic stroke would show up on an MRI. The fact

that you've had loss of function makes me wonder. Have you called Dr.

Whiteman?