Guest guest Posted June 19, 2008 Report Share Posted June 19, 2008 I finally had a follow up with my neurologist, and he sent me for some blood test, a " sarc panel " . I think one test was a ACE test... does anyone know how reliable these tests are for diagnosis? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2008 Report Share Posted June 19, 2008 HI , Sure is quiet, on the blood tests, there not always reliable, if it's high then that a good indication it might Sarcoid, however if it's normal, that doesn't mean you don't have sarcoid either, I've never had any abnormal blood tests, in fact almost all my test are negative, yet I can move my legs very well, have lost 50% use of my left arm, have lesion, they only way I know I have Sarcoid was from a Biopsy from a swollen lymph node! It's hard to diagnose it for sure, it's usually a process of elimination.. Let us know what when you find out and my thoughts and prayers are with you, Marla . I never heard of a Sar-panel? Many Blessings and Hugs Abouhamama I finally had a follow up with my neurologist, and he sent me for some blood test, a " sarc panel " . I think one test was a ACE test... does anyone know how reliable these tests are for diagnosis? Gas prices getting you down? Search AOL Autos for fuel-efficient used cars. -- Marla Bramer Independent Beauty Consultant Kaymbramer@... www.marykay.com 'I know the plans I have for you, declared the Lord, 'plans to prosper you and not to harm you; Plans to give you a future and a hope Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2008 Report Share Posted June 20, 2008 Blood tests> > I finally had a follow up with my neurologist, and he sent me for some > blood test, a "sarc panel". I think one test was a ACE test... does > anyone know how reliable these tests are for diagnosis?> > >------------------------------------~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- FAITH CHAT: SUNDAY 4PM-5PM EASTERN TIME CHATROOM LINK: http://www.sarcbuddies.com/chat Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2008 Report Share Posted June 20, 2008 There are certain blood pressure medications which may alter the results one of them is Lisinipril which is and ACE Inhibitor, this med could reduce the angiotension converting enzyme in order to lower your blood pressure. Thus giving you a negative result . There are other blood tests that show inflamation in your body, one is a C-Reactive Protein which can be elevated by many things besides sarcoidosis. Another is a Sedimentation Rate (ESR) this test assesses the blood for the amount of inflamitory sediment that may be in the blood. A while back my husband became very ill while having an infected toe. His Kidney and Liver were trying to shut down. It was very scary for me to see him have increasing signs of a coma. He had everykind of specialist while he was hospitalized. One of the tests the kidney specialist ordered was new to me and for the life of me I can't remember its name but it was a no hands barred test for sarcoidosis. My brain is messed up some day I will think of it and let you know. It was a word then-B Hope this helped a little. Judy in PA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2008 Report Share Posted June 21, 2008 Judy, It was probably a TNF (Tumor Necrosing Factor- and it would show if he had too much of this protein in his blood. As for it being for sarc-- it's still a general test for an overabundance of proteins that shouldn't be there-- Thanks for the reminder that some of the ACE inhibitors do give a false high/low result. I'd also not remembered the CRP (C Reactive Protein) this is a general indicator that you have inflammation going on. It will be high in most arthritis and they know now that it can be a sign of systemic inflammation. Later, Tracie NS Co-owner/moderator Re:Blood tests There are certain blood pressure medications which may alter the results one of them is Lisinipril which is and ACE Inhibitor, this med could reduce the angiotension converting enzyme in order to lower your blood pressure. Thus giving you a negative result . There are other blood tests that show inflamation in your body, one is a C-Reactive Protein which can be elevated by many things besides sarcoidosis. Another is a Sedimentation Rate (ESR) this test assesses the blood for the amount of inflamitory sediment that may be in the blood. A while back my husband became very ill while having an infected toe. His Kidney and Liver were trying to shut down. It was very scary for me to see him have increasing signs of a coma. He had everykind of specialist while he was hospitalized. One of the tests the kidney specialist ordered was new to me and for the life of me I can't remember its name but it was a no hands barred test for sarcoidosis. My brain is messed up some day I will think of it and let you know. It was a word then-B Hope this helped a little. Judy in PA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2008 Report Share Posted June 21, 2008 It wasn't that, It had a very weird name that I had never seen before ion any of the practices I worked in. If I feel up to it I am going to medical records to check out his chart with him. His doctor had been the top transplant surgeon at Hershey Medical Center and was really up on autoimmune disease. I'll let you know when I find out the name. Sending hugs and smoke free air, Judy Basso > > Judy, > It was probably a TNF (Tumor Necrosing Factor- and it would show if he had too much of this protein in his blood. As for it being for sarc-- it's still a general test for an overabundance of proteins that shouldn't be there-- > Thanks for the reminder that some of the ACE inhibitors do give a false high/low result. I'd also not remembered the CRP (C Reactive Protein) this is a general indicator that you have inflammation going on. It will be high in most arthritis and they know now that it can be a sign of systemic inflammation. > Later, > Tracie > NS Co-owner/moderator > > > > Re:Blood tests > > > There are certain blood pressure medications which may alter the results one of them is Lisinipril which is and ACE Inhibitor, this med could reduce the angiotension converting enzyme in order to lower your blood pressure. Thus giving you a negative result . There are other blood tests that show inflamation in your body, one is a C- Reactive Protein which can be elevated by many things besides sarcoidosis. Another is a Sedimentation Rate (ESR) this test assesses the blood for the amount of inflamitory sediment that may be in the blood. > > A while back my husband became very ill while having an infected toe. His Kidney and Liver were trying to shut down. It was very scary for me to see him have increasing signs of a coma. He had everykind of specialist while he was hospitalized. One of the tests the kidney specialist ordered was new to me and for the life of me I can't remember its name but it was a no hands barred test for sarcoidosis. > My brain is messed up some day I will think of it and let you know. It was a word then-B > > Hope this helped a little. > > Judy in PA > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2008 Report Share Posted June 22, 2008 Judy, Where do you live that you are getting smoke? We live in VA and we are getting it from a fire in the Dismal Swamp. It is a peat like bog that who knows when they will be able to extiguish. The wind just turned and it is getting smoky outside. Terri G. > > > > Judy, > > It was probably a TNF (Tumor Necrosing Factor- and it would show > if he had too much of this protein in his blood. As for it being for > sarc-- it's still a general test for an overabundance of proteins > that shouldn't be there-- > > Thanks for the reminder that some of the ACE inhibitors do give a > false high/low result. I'd also not remembered the CRP (C Reactive > Protein) this is a general indicator that you have inflammation going > on. It will be high in most arthritis and they know now that it can > be a sign of systemic inflammation. > > Later, > > Tracie > > NS Co-owner/moderator > > > > > > > > Re:Blood tests > > > > > > There are certain blood pressure medications which may alter the > results one of them is Lisinipril which is and ACE Inhibitor, this > med could reduce the angiotension converting enzyme in order to lower > your blood pressure. Thus giving you a negative result . There are > other blood tests that show inflamation in your body, one is a C- > Reactive Protein which can be elevated by many things besides > sarcoidosis. Another is a Sedimentation Rate (ESR) this test assesses > the blood for the amount of inflamitory sediment that may be in the > blood. > > > > A while back my husband became very ill while having an infected > toe. His Kidney and Liver were trying to shut down. It was very scary > for me to see him have increasing signs of a coma. He had everykind > of specialist while he was hospitalized. One of the tests the kidney > specialist ordered was new to me and for the life of me I can't > remember its name but it was a no hands barred test for sarcoidosis. > > My brain is messed up some day I will think of it and let you know. > It was a word then-B > > > > Hope this helped a little. > > > > Judy in PA > > > Quote Link to comment Share on other sites More sharing options...
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