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Re: Lucas is 9!!

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A huge HAPPY BIRTHDAY TO LUCAS!!! What a true celebration. Lucas is as

old as my second son . Glad he is doing better. Hope you have a

wonderful day Lucas. Brithdays are so much fun. Being spoiled by

everyone paying attention to your special day because you are a special

boy. Enjoy!!!

Nerenhausen

mom to Leah

Loriann Melby wrote:

>Can't believe we will be celebrating Lucas birthday

>this weekend. Lucas turns 9 today (3/12). This past

>month really threw him for a loop though. His stamina

>is still not there. Fortunately we have not had any

>repeat seizures since his grand mal in ER on 2/10/05.

>My heart goes out to all those struggling with recent

>illnesses. Sure hope all get well soon.

>Loriann-mom to and 12 yr old twins and

>Lucas 9 yrs old with nonspecific mito disorder,

>FOD(LCHAD), cortical visual impairment, ataxia, acute

>onset febrile seizures, abnormal EEG, hypothyroid due

>to pituitary malfunction, kyphosis, asthma, GERD,

>impaired motility, G-tube vented, J-J tube fed, and

>has an adorable smile

>

>

>

>Please contact mito-owner with any problems or questions.

>

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Wishing Lucas a very, very Happy Birthday!!

Lois

> [Original Message]

>

> To: <Mito >

> Date: 3/12/2005 5:50:09 PM

> Subject: Re: Lucas is 9!!

>

>

>

> Congrats Lucas on the big #9!!!! Way to go,

>

> Dawn

>

>

>

>

>

>

> Please contact mito-owner with any problems or questions.

>

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Wishing Lucas the best Birthday yet. Hugs for all! Isn't wonderful to celebrate. May this year be the best and the beginning of better times.

Myst Abigail and Our Family

Loriann Melby wrote:

Can't believe we will be celebrating Lucas birthdaythis weekend. Lucas turns 9 today (3/12). This pastmonth really threw him for a loop though. His staminais still not there. Fortunately we have not had anyrepeat seizures since his grand mal in ER on 2/10/05. My heart goes out to all those struggling with recentillnesses. Sure hope all get well soon. Loriann-mom to and 12 yr old twins andLucas 9 yrs old with nonspecific mito disorder,FOD(LCHAD), cortical visual impairment, ataxia, acuteonset febrile seizures, abnormal EEG, hypothyroid dueto pituitary malfunction, kyphosis, asthma, GERD,impaired motility, G-tube vented, J-J tube fed, andhas an adorable smile Please contact mito-owner with any problems or questions.

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Happy Birthday Lucus! Hope your day was superb and the weekend will also be

special.

See www.caringbridge.org/ia/mitomomof9 and www.heartbeatsformito.org to see

a photo look into what Mito looks like

Darla: mommy to

Asenath (5) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomia, SID, global delays, asthma, cyclic vomiting,

bladder issues, wheelchair for distances, eye issues, autistic behaviors,

gastric emptying issues...

Zipporrah (17 months) Mito, strokes, neuro-motor planning dys., SID, GERD,

dysphasia, 100% G-tube fed, speech delays, extreme fatigue, excessive

phlegm, asthma, trach issues, aberrant subclavian artery, disautonomia,

hypertonicity, migraines, possible seizures, dumping syndrome, iron

deficiency...

Luke (16)migraines, sensory issues, & some evidence of SLE's...

Leah (14), Rachael (13), Isaac (11), Tirzah (8), Kezia (4),

Marquis (3) prenatal drug & alcohol exposure with likely FAS, behavioral

issues, SID...

Joey (15 months) with hydrocephalus, dysgenesis of the corpus callosum,

encephalomalacia & leukomalacia, possible arachnoid cyst,

Lucas is 9!!

>

> Can't believe we will be celebrating Lucas birthday

> this weekend. Lucas turns 9 today (3/12). This past

> month really threw him for a loop though. His stamina

> is still not there. Fortunately we have not had any

> repeat seizures since his grand mal in ER on 2/10/05.

> My heart goes out to all those struggling with recent

> illnesses. Sure hope all get well soon.

> Loriann-mom to and 12 yr old twins and

> Lucas 9 yrs old with nonspecific mito disorder,

> FOD(LCHAD), cortical visual impairment, ataxia, acute

> onset febrile seizures, abnormal EEG, hypothyroid due

> to pituitary malfunction, kyphosis, asthma, GERD,

> impaired motility, G-tube vented, J-J tube fed, and

> has an adorable smile

>

>

>

> Please contact mito-owner with any problems or questions.

>

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HAPPY BIRTHDAY!

Always a joy to hear that one of our kiddos has

made another joyous year!!!

Hope it was a Great ONE!!

Praying for good all of us,

AnnMarie L. - Complex IV (pre-diabetic, hypothyroid, adrenal/endocrine

issues)

Married to my best friend Rick,

Very Busy Mom to (15), (12), Cassandra (6) and

Joe (5) - complex IV, lactic acidosis, CP,

tethered chord syndrome, dysautonomia, and

a smile that never quits :-)

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