Guest guest Posted March 29, 2005 Report Share Posted March 29, 2005 The ENT is correct. If the obstructive sleep apnea is related to tonsils and/or adnoids, removal will greatly improve the sleep study. The difficulty with mito is that many children and adults have obstructive sleep apnea related to muscle weakness affecting the airway. When that is the case, a T & A will not help. Our oldest daughter had a T & A with no improvement, her obstructive apnea was definitely related to her mito and muscular weakness or floppiness during sleep. She is now on BiPAP and doing much better. It is extremely important to have an ENT and Pulmonologist that understand mito and the implications in regars to sleep related issues. The kids can not do well if they don't have restful sleep with adequate oxygen to their brains. is continuing to have heart rate issues related to pacemaker leads that are not capturing/sensing correctly. The electrophysiologist at Cleveland Clinic is away this week. She will review the new event recording strips when she returns Monday. Her partner called this mornign to say they have the strips, they are concerned but will likely need to monitor for at least another week prior to scheduling a replacement. They review all cases as a group so there is no question in regards to medical necessity and obtainign insurance authorization. For the risk is significant as she is ventilator dependent during sleep related to autonomic issues, ie primary ventilatory failure. Our Critical Care attending in Milwaukee is in agreement with this plan. If you have very specific questions feel free to email me privately on my personal account servedogmom@... Quote Link to comment Share on other sites More sharing options...
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