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Lucas is 9!!

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Can't believe we will be celebrating Lucas birthday

this weekend. Lucas turns 9 today (3/12). This past

month really threw him for a loop though. His stamina

is still not there. Fortunately we have not had any

repeat seizures since his grand mal in ER on 2/10/05.

My heart goes out to all those struggling with recent

illnesses. Sure hope all get well soon.

Loriann-mom to and 12 yr old twins and

Lucas 9 yrs old with nonspecific mito disorder,

FOD(LCHAD), cortical visual impairment, ataxia, acute

onset febrile seizures, abnormal EEG, hypothyroid due

to pituitary malfunction, kyphosis, asthma, GERD,

impaired motility, G-tube vented, J-J tube fed, and

has an adorable smile

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