Re: [SPAM] neurosarcoidosis suffer for 6 years

[Guest guest]

Jackie

I am so sorry you are going through this alone. Why do you have to hide your feelings from your children. How old are they. They could be the support you need and want. We are all here for you and understand.

I can't believe how shallow some men are and how unfeeling they can be. I know this is a very scary time for you as it would be for him but he lacks the strength.

You can vent on us that is what we are here for. that and knowledge of the disease.

My heart goes out to you. I am one of the lucky ones. My spouse and I were married and had been divorced for 9 years. We got back together about 6 months before I was told I had NS. We are not married but He stayed with me. Slept in the Hospital room with me and when I was in the nursing home he was there every day. I know he is one in a million but I also understand the emptiness you must feel.

My sister, which was very close, will not be around me. I only hear from her at family gatherings and it hurts like hell.

If you need to vent and even cry I will do it with you. I can also be there to laugh with you.

If you need to talk privately you can email me at shadowme810@...

God bless you and many hugs.

Jackie from WI

[sPAM] neurosarcoidosis suffer for 6 years

hi my name is jackie i have just read a few emails on partners not understanding please think how lucky you are to have a partner to talk to mine left just after i came out of hospital he told me he no longer loved me on getting home from hospital i had been in for a month he stayed in a hotel with someone else while i was in hospital i did not know anything was wrong we had been married 25 years and were planing to go away for our silver wedding aniversiry i wish i still had him with me now but i know he was a cowid and cheat i believed nothing was wrong with our marrage so you can see what a shock this was i live with my son and daughter who he has not contacted since so i suppose i just had to email to say how lucky you are and i hope you all stay together i know how hard this illness is i have all the sytoms but no one to talk to i cry inside my heart but cant let the kids know how i feel i am lonley and scared i dont know what the future holds and pray in my way each day i do wish you could all feel better please excuse the spellings but that seems to be going too