Re: Behavior issues can you help? PLEASE to LISA H.

[Guest guest]

Thank you for giving me hope. I also just found out we got our eligibility letter from the department of developmental disabilities and now we will be put on the waiting list for funding for respite care. For now I will take the time where I get it , when he's in school! Whatever it takes!

Thank you, Tommie & Horsley wrote:

,

I feared them taking my child as well because of the yelling I hate you,spanking her, her running up and down the street hollering at the top of her lungs stay away from me, help me dont let her hurt me, running away you name it she has tried it. I am glad you felt some relief after you called for an evaluation. I pray you get a much better outcome than we did. The fella we used was just off in lala land someplace and was a bit loonie and no help. He just followed and did everything the other Dr told him to do. We found that putting in her own room and bolting the door closed and not saying anything to her and not opening the door until she was completly calm and had been for a little bit worked for us. She was constantly told that if she broke something it would be her fault and it would not be replaced. We put a speaker monitor in her rrom and a peep hole in her door so we could hear all and see all in case she was hurting herself we could go in.

This worked wonders and today when she gets frustrated or mad she automatically disapears to her room and comes out when she has cooled off. We had a celebration to remove the lock on the door after a long period of good behavior. We had the understanding that if she began misbehaving again it would go right back on and the peep hole we covered it with white out...she had earned her privacy. We have never had to put the lock back or remove the whiteout that covered the peep hole! will be 15 May 3rd. Putting her to herself also kept my frustrations down and my blood pressure! Sometimes really could not help her behavior so I did not want to spank her for something she could not help. There were times I really think she could help it but putting her in her own space away from me and taking away her ability to trash my entire house helped my entire family.

The psyc fella told me this would never work.....but it did! I hope you find the answers you are looking for and things get better for all of you soon. Been there done that and I am sorry for anyone that has to go through it. Try this and get you some respite care......you will be a different person and will be able to handle things much better when things get tough!

Blessings,

Horsley

RE: Behavior issues can you help? PLEASE to sue ann

Sue Ann, I did schedule the eval. I just realized that things wouldn't get any better if I didn't take any action now. I felt relief as soon as I made the call. My biggest fear is that they will take my child from me for spanking. That has been my last resort with him. He tells me that I'm mean and that he hates me, today he has been spitting at me all day. I'll be glad to find out what is really going on with him. I hate spanking my child, but at times it is the only thing that will make him stop his behavior. What else can I try? Time outs have never worked for us and taking away priviliges only starts a more huge rage of outbursts that even though I'm not giving in it makes me think that the battle is not worth it.

Sue Ann Bube wrote:

First, I will forward your email. Second, DON’T wait to get help for your son. What difference will the muscle biopsy make. There is no special treatment for Mito and nothing that will make a difference in psych evaluation. You are at the end of your rope and INSIST on some help. Don’t let the doctor’s push you aside. If you’re sure this is more than the “normal” amount of child defiance then seek help and don’t let them talk you out of it.

Sue Ann Bube

-----Original Message-----From: karen brubaker Sent: Tuesday, April 12, 2005 3:03 PMTo: Mito Subject: RE: Behavior issues can you help? PLEASE

Please I can use all the help I can get. Sometimes I don't know if we'll make it to the next day I have resorted to locking myself in my room for a time out, somewhere where he can't reach me to unleash his rage. I wish his doctor's would help more in this area. They don't want to use any medication yet, not until the full diagnosis of the muscle biopsy is in. I would like to take him in for a psych evaluation but know it may not do us any good yet.

Thank you so much! Sue Ann Bube wrote:

,I have two parents in Indiana who are dealing with the same issues everyday. I don't think there is any easy answer but I would be happy toforward your e-mail to them with your permission.Sue Ann BubePresident, UMDF Indiana-----Original Message-----From: karenbrbkr Sent: Tuesday, April 12, 2005 1:08

AMTo: Mito Subject: Behavior issues can you help? PLEASEDo any of you deal with behavior issues? gets out of control at times and lately seems more often. He normally talks loud from a slight hearing loss but more and more he has been yelling hitting kicking just plain defiant!!! I have taken several parenting classes but none seem to deal with kids with special needs. Sometimes these outbursts have been a prelude to him getting sick, others it's just him being 7!!! How do any of you handle the outbursts? My

friend calls her daughter's 'metabolic meltdowns'. She is lucky though, she has someone at home to relieve her when her daughter gets out of control. Please ALL suggestions are welcome.Thank You, Please contact mito-owner with any problems orquestions.