Guest guest Posted April 17, 2005 Report Share Posted April 17, 2005 Hello Everyone, The last few days I've really been watching pretty close, he hasn't seemed like himself. Yesterday he was having such a hard time walking, his legs kept buckling under him. His physical therapist said he was worse than the week before. Then this morning when I went to give him his Tegretol and Topamax he was having a seizure. He has the partial seizures that only affect the right side of his body. I have noticed him having more than normal lately and am wondering if this may be why he has had a harder time walking the last few days. Does anyone else have this? Usually only after the big seizures does it take him awhile to get back to baseline, so I'm a little concerned that we may need to increase meds again. He has been very pale the last week and his energy has come in spurts. I HATE SEEING HIM LIKE THIS!!! I am grateful that we are not in the hospital or any thing like that. Luckily we get to see the GI doc this week and I'm counting the days now (8) until we see Dr. Saneto who is I guess the mito specialist in Seattle. He should have our muscle biopsy results by now. It was done on Jan. 26th. Please pray for us that they are in. Sorry this is so long I just needed to write. So much going on right now. Thanks for listening, Quote Link to comment Share on other sites More sharing options...
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