Re: Re: Behavior issues can you help?

[Guest guest]

My daughter gets one large pupil, pulls her hair, beats her head on things and just has a strange behavior, we found out that she was having migraines. (per Dr. cohen) Just my "input" Patti

Re: Re: Behavior issues can you help? PLEASE..........

She still bangs her head, scratches herself, pulls her hair out. Her eyes look so weird, like she isn't there. Someone a couple of weeks ago discribed their child as having enlarged pupils

have you considered seizure activity in the frontal lobe? EEG's aren't always perfect but that was how my 's weird behavior was explained and it made sense. He did show some activity in the frontal lobe but we were never able to define the specific type of siezure. However, you might consider having your neuro try her on some anti=seiz meds, just in case. Our other son, who has high functioning autism (not blood related=not mito related), takes them for behavior even though he doesn't have seizures, so I would give it a try. Tergretol worked for both of my boys and then added Neurontin later when the dementia got so bad and caused weird behaviors...we saw a great improvement. Neurontin also works for neuropathic pain, which could be pain she is having but doesn't know how to tell you...sometimes that causes behavior too. A lot of Mito kids have had good success with Neurontin.

deb...mom to four great kids and wife to one amazing guy!www.LifeofLoveProject.orgwww.debwells.comPlease contact mito-owner with any problems or questions. Please contact mito-owner with any problems or questions.