Guest guest Posted March 28, 2005 Report Share Posted March 28, 2005 Mrs. Mery a lot of pleasure, my name is Yanet Alvarez Boy of Guzman, I am from Cusco-Peru.Excuse my audacity when writing him, I am aunt of a small one that suffers their boy's same illness Connor, my niece's name it is Angie she was diagnosed approximately one year ago with the Illness of Leigh, Angie this next one to turn 2 years of age and in this whole lapsed year me and dedicated to look for informacin about associations like this but regrettably all this in English and the truth is that me not you much of ingles(estube studying two months motivated to help doesn't reach myself to Angie, but the money to continue studying), I continued trying to get help but regrettably a lot of people told me IF in a beginning but then they lost the interes(esto you/he/she includes to lso doctors), quisas because I am a 23 year-old youth my career of Physical Therapy and Rehabilitation and I even maintain the enthusiasm and mainly the hope in finding people that can help my girl and good in this road so long I could consent to this program of translation for computer. For their electronic mail he/she left the first one that I translated and let us cheer up to write him for the fact that you know what means to have a small one suffering this terrible illness, good you imagined like it is when the girl is even but small, the truth writes him with tears in the eyes not so much for sadness but for the hope that he/she can help us offering us information that us puda to serve, or cantactandonos with professionals that can attend us mainly in the part in some way but important of the treatment that as he/she investigates it is the DIET, of which in my country one doesn't have a lot of information. I request to you he/she helps us, and we can this way iniicar a chain of help to Angie that is the first case registered in my country with this illness type. Eternally grateful, a strong kiss and hug. God blesses to its you and its son yanet alvarez. Quote Link to comment Share on other sites More sharing options...
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