Re: venting....trust me..VERY LONG/Donna

[Guest guest]

Donna

this is a good place to vent...an NO, it is not your fault...and YES, they do not know everything about mito ....they learn every day....unfortunately there are only a few specialist in the country, in the world...and at the end of the day it comes down to every day management and making the best of every day and not to let the diease consume our entire lifes....that is a hard challenge....for our kids, for ourselves we have to keep seeing the glass half full and not half empty...we have to fight and keep going....and you are not alone in your feelings...many of us here fight the same battles and shed the same tears of frustration and fears....yet we have to remember to celebrate life whilst it is here...with us , with our children....no one out there understands the internal battles we live thru every day.....even children with cancer have a chance at a cure most of the time.....there is no fix for us, our kids.....yet we cannot blame ourselves....but love andb cheerish all the time we have with each other....not sure if any of this helps...just be assured you are not alone, and Yes, we do understand

rosy, mum to max 5