Re: Pneumonia and antibiotics

[Guest guest]

Hi :

We are going through the same thing right now. My daughter, Leah, age 6

1/2 has pneumonia. It came on suddenly. Started coughing Friday

evening and started a fever on Saturday, and when we took her in on

Monday her ped thought it was just a virus. But the radiologist looked

at her films and confirmed the case. She is much more grumpy with this

than any other cold virus and this is her first major illness this year.

She is on amoxicillian twice a day. But she is much looser in her

muscle tone and very little appetite. Well gotta run because she is

crying right now. Take care.

Nerenhausen

mom to Leah

ikeleclaire wrote:

>My Elise or (Ellie) has pneumonia, again!! The antibiotics don't

>seem to be working yet. She has been resistant to them before. She

>is very prone to pneumonia. Her new pediatrician said it could be

>from weak muscles in her chest, so that she can't cough effectively.

>Is this a common occurence with your children? I just found out a

>week ago about the mito diagnosis, still looking for the exact form

>of PDCD, she had a blood draw on Friday and her levels were normal,

>should I have them drawn again? She's much worse and very lathargic,

>lots of ataxia, but I would be tired too if I had pneumonia. I hate

>to put her through it again.

>Thank you,

>

>

>

>

>

>

>

>Please contact mito-owner with any problems or questions.

>

[Guest guest]

We have experienced pneumonia a couple of times. Have you had her

immune system checked? Having pneumonia more than once in a short

time could indicate an immune system problem. If it is aspiration

pneumonia it could be a swallow issue. Good luck.

Geri-Anne and Wyatt Complex I

caringbridge.org/mn/wyattc

>

> My Elise or (Ellie) has pneumonia, again!! The antibiotics don't

> seem to be working yet. She has been resistant to them before. She

> is very prone to pneumonia. Her new pediatrician said it could be

> from weak muscles in her chest, so that she can't cough effectively.

> Is this a common occurence with your children? I just found out a

> week ago about the mito diagnosis, still looking for the exact form

> of PDCD, she had a blood draw on Friday and her levels were normal,

> should I have them drawn again? She's much worse and very lathargic,

> lots of ataxia, but I would be tired too if I had pneumonia. I hate

> to put her through it again.

> Thank you,

>

[Guest guest]

She's had a normal swallow test, they thought she had asthma in the

past too, but that has also been ruled out. I really do think it is

a muscle problem now, her fever has broken but her lungs are worse, I

brought her in today and have to go in tomorrow, if not better I will

definately get her blood cells checked. She was once extremely low

on white blood cells.

> >

> > My Elise or (Ellie) has pneumonia, again!! The antibiotics don't

> > seem to be working yet. She has been resistant to them before.

She

> > is very prone to pneumonia. Her new pediatrician said it could be

> > from weak muscles in her chest, so that she can't cough

effectively.

> > Is this a common occurence with your children? I just found out

a

> > week ago about the mito diagnosis, still looking for the exact

form

> > of PDCD, she had a blood draw on Friday and her levels were

normal,

> > should I have them drawn again? She's much worse and very

lathargic,

> > lots of ataxia, but I would be tired too if I had pneumonia. I

hate

> > to put her through it again.

> > Thank you,

> >

[Guest guest]

Have you gotten the pneumonia vaccine? Checked titers? My daughter had

Prevnar but wasn't immune. She then got the adult Pneumo Vac. She's had

her titers checked once and were OK (not great). We're getting them checked

again today.

[Guest guest]

,

What antibiotics is Ellie on? Chelsea is put on Ceftin, which is pretty strong, and covers all respiratory bugs. There is also an inhaled antibiotic called Tobrimycin, or Tobi, that is done via nebulizer. Chelsea has had to do 21 days of both to get rid of a recurrent infection. This past fall she was put on Cipro, a very strong antibiotic, for a sinus infection. She has not been on antibiotics since and has been sick a couple of times.

Chelsea also has weak lung function from hypotonia and asthma on top of that. She got a cough assist machine last summer that works wonders, it gets up what she can't. If Ellie has a pulmonologist, I would ask him about this. There is also a device called the vest, but Chelsea's pulm was concerned that this would only loosen the junk, and if she couldn't get it out, it could cause a plug in her lungs somewhere. I know others on this list do like the vest.

I also do chest PT, and pulmacourt nebs on her twice a day as preventative care, and albuterol as needed. I increase the PT and albuterol when she is sick.

I hope Ellie is feeling better soon!

e, Chelsea's mom, Atypical Rett Syndrome (FKA nonspecific mito)