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Re: sweaty head

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, Both of my boys have a sleep disorder. They always had the

sweaty heads, too. It can be a symptom of a sleep disorder. They

both had sleep studies to diagnose this. They both use a cpap

machine at night for theirs. They only have the sweaty heads and

necks now when they don't wear their machines (like when they have a

nose cold). So, I know that is the cause for them. They both had

this since babies, although they are now 9 and 13 years. Tell the

doctor and good luck to you.

Cindy (mom to Seth and Ben, both mito)

> Lucas who is 15 months ,currently suspected of Leigh's.

>

> He seems to get a very sweaty head at times ,mostly when sleeping

his face and hair end up soaking.

>

> What causes this?

>

>

>

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For Grace it is typically related to low blood sugar. When the sugar drops too low, sweating is common. There are usually other sypmtoms though, including shaking, lethargy and irritability. You may want to have his blood sugar checked, just in case. You can give raw cornstarch before bedtime and see if it goes away. The cornstarch takes a long time for the body to metabolize so it usually maintains the blood sugar through the night.

Another idea may just be him getting too hot. Many mito kids have heating issues. Just a few nights ago my husband was playing with Grace. She was putting the pillow over her head to hide from him. Anyways she fell asleep still hiding under the pillow. I went in the room a few min. later to check on her, pulled the pillow off and her head was soaking wet. Thankfully I did go in there because Grace has heat stroke very easily. Maybe you could try dressing him very cool and seeing if this helps.

Best wishes

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were in the same boat as on this one... would wake up

DRENCHED in the middle of the night, shakey, soaking and freaked

out...

turned out his blood sugar was dropping...

he now has to go to bed with a full tippy cup of soy milk (doesnt

drink normal milk) and he will wake up and drink through the

night... some nights he has to get up around 3am and ahve a few

crackers if its particularily low...

once we got his sugar under control the sweaty episodes stopped...

Ive read about it being related to sleep apnea as well...

definately worth asking the doc about!

Keely

>

>

> HI Luke, give your mom a hug from Matt and I, she is in our

thoughts

> and prayers, as you and your family are too!! Barb

>

>

>

>

>

>

> Please contact mito-owner with any problems or

questions.

>

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Hi roomies,

Ellie very often has a sweaty head at night. She will be absolutely

drenched!!! We flip her pillow (which will have a circle about 8 or

9 inches in diameter completely wet!), change her shirt and

sometimes even have to wipe her down with a cold washcloth. She

continues to sleep through all of this!!! If she does wake up, she

is usually a little shaky and out of sorts...

I never thought of relating it to a sugar issue...we don't check her

sugar levels. How do you all do it? Also, is a sleep study

necessary to diagnose apnea? I've often wondered if she has

apnea...but I don't know how to tell...

Hope everyone is doing well..

KK

Mommy to Ellie, 3.5, Complex IV and Leigh's and my angel!

> >

> >

> > HI Luke, give your mom a hug from Matt and I, she is in our

> thoughts

> > and prayers, as you and your family are too!! Barb

> >

> >

> >

> >

> >

> >

> > Please contact mito-owner with any problems or

> questions.

> >

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We have a Blood sugar monitor (the kind diabetics use) and poke

s finger to test his blood...

The finger pokers (lol cant remember the name) nowadays have

settings so you can make it a super tiny poke... actually

giggles when we check his (wierd i know).

Keely

> > >

> > >

> > > HI Luke, give your mom a hug from Matt and I, she is in our

> > thoughts

> > > and prayers, as you and your family are too!! Barb

> > >

> > >

> > >

> > >

> > >

> > >

> > > Please contact mito-owner with any problems or

> > questions.

> > >

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