Request For Your Help from Families of Children With Genetic Disorders

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Please participate if this applies to your family. It takes five

minutes to fill out the survey.

Alice

Please share this with families in your region

Request for Help from Families of Children with Genetic

Disorders

Genetic Alliance - NCHPEG Survey - please help us!

The Genetic Alliance is requesting the help of families of

children with genetic disorders. The following is their request:

As consumers, you often have concerns about what providers

know (and don't know) about genetics, but often don't have a chance

to describe what you think providers need to learn. Now you have an

opportunity to be heard by an organization that teaches health care

providers about genetics, the National Coalition for Health

Professional Education in Genetics (NCHPEG).

The Genetic Alliance is partnering with NCHPEG in a survey.

The purpose of this survey is to ask families living with children

with genetic conditions about their perceptions of their health care

provider knowledge of genetics. The information from this survey

will be used to develop genetics education for specific types of

health care providers.

http://www.nchpeg.org/SFGC_Survey/Survey.asp. If your family

member has more than one medical condition, you may respond to the

survey once for each condition. You are the experts we need your

help!!!! Thanks so much!

Sharon Terry, MA, President & CEO, Genetic Alliance, 4301

Connecticut Avenue, NW Suite 404, Washington, DC 20008-2369, Voice:

x213,

Fax: , Email: sterry@..., Web:

http://www.geneticalliance.org