RE: partial seizures? To Lois

[Guest guest]

Lois,

It's so funny that you mentioned sickness because vomited this morning and had a slight temp.(99.1) this afternoon. He seems to be doing fine now. So maybe it's not a meds thing after all. has the partial complex seizures and myoclonic spasms (not seizure). He twitches all the time and at first I had a hard time telling the difference as to what was an actual seizure.

I hope all is well with Leighann.

Take care,

lois saunders wrote:

,Leighann is usually really off when she starts having the seizures. She hastremors, and they get reallybad, the balance is way off, her appetite, she gets very clingy, herconcentration is gone. Usuallythis comes right before and during a sickness, but our last episode justhappened with no sickness.I usually call her neuro, they adjust her meds, or sometimes just say towatch her. Not much help,but if you're thinking it might be time for the meds to be upped, then callthe doctor with the recentproblems. I wish you the best with , it's no fun to have to do guesswork and to see them down.Lois> [Original Message]> > To: <Mito >> Date: 4/17/2005 3:56:53 AM> Subject: partial

seizures?>>>> Hello Everyone, >> The last few days I've really been watching pretty close, he > hasn't seemed like himself. Yesterday he was having such a hard time > walking, his legs kept buckling under him. His physical therapist > said he was worse than the week before. Then this morning when I > went to give him his Tegretol and Topamax he was having a seizure. > He has the partial seizures that only affect the right side of his > body. I have noticed him having more than normal lately and am > wondering if this may be why he has had a harder time walking the > last few days. Does anyone else have this? Usually only after the > big seizures does it take him awhile to get back to baseline, so I'm > a little concerned that we may need to increase meds again. He has > been very pale the last week and his

energy has come in spurts. I > HATE SEEING HIM LIKE THIS!!! I am grateful that we are not in the > hospital or any thing like that. > Luckily we get to see the GI doc this week and I'm counting the days > now (8) until we see Dr. Saneto who is I guess the mito specialist in > Seattle. He should have our muscle biopsy results by now. It was > done on Jan. 26th. Please pray for us that they are in.> Sorry this is so long I just needed to write. So much going on right > now. >> Thanks for listening, >>>>>>> Please contact mito-owner with any problems or questions. >