Guest guest Posted April 20, 2005 Report Share Posted April 20, 2005 Hi All My 18 month son Connor has Mito - suspected Leigh Disease. Despite having extremely low muscle tone, hearing loss, eye sight loss, G-tube (all feeds) etc, etc he has never had reflux which has always stunned our doctors. Unfortunately very recently his reflux started. It has been recommended that he has an operation to seal of the reflux - presumably by tieing off the stomach. From a practicle point of view Connor does not eat anything via the mouth - all feeds are done via the tube. We also don't expect this situation to change in the future. My question is, is this operation safe and is it the standard thing to do in this situation. We live in South Africa and have no Mito specialists here. I am not overly concerned from an anaesthetic point of view as he has had many (2 x MRI, Biopsy, tonselectomy and others) and has as far as we could tell no negative side effects. We have been told that this must be done to prevent pneumonia. It just feels so permanent. Any guidance in this regard i'd appreciate it. Quote Link to comment Share on other sites More sharing options...
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