Re: [mito] Letter from Dr. Cohen about schools

[Guest guest]

Same here. If you would share this letter with us we can get our Dr's to write on like it/ right termonology ect.

Thanks,

RE: [mito] school question (kindergarten) - long...... .......

You mentioned a form letter that Dr Cohen sends out to schools for his patients who have mito. That sounds great, do you think you could get a copy, I would love to try to get one of our doctors to do the same. Please respond to me off line and I can get you a fax number or just email it or what ever you can do.//Thanks, wrote:

From what I understand a private school does not have to go out of there way to adapt, but I do not think they can outright reject him for his disability. That would really infringe on the Americans with Disabilities Act. I would think they would have to provide things like wheelchair ramps and the like so he can physically attend school. I'm not sure how it would go for absences and that type of thing. With proper medical info, they probally would adapt especially if his dad works there. They still have to honor his IEP.

On the other hand public school is required to do whatever the doctor sees fit. Education and Medical handicaps are completely seperate. Just because Asher may require a wheelchair will not automatically put him in special ed. There should not be much of a problem at all regarding his physical demands since most schools have delt with it before. I guess it ultimatly goes down to the individual school system. While they all are required to do the same thing, some are better some are worse.

We are going through similar situations with Grace. She is just transitioning to get ready for preschool. I know, at least, Dr. Cohen has a pre written form letter for school systems to inform them of the special needs of mito kids. Something like that would be very handy when it comes IEP time.

Best wishes

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