Guest guest Posted April 20, 2005 Report Share Posted April 20, 2005 Hi- I know I have seen some of you mention cooling vests for overheating... I am looking for more info, where you get them, pricing, etc. We are having an unseasonably warm day here in Boston (close to 90 degrees!) and I noticed that Jack got overheated VERY quickly. Overheating is a new thing for us... He is three and I'm sure will want to try and keep up with his big brother this summer outside. It is a little scary how fast he looked like he was going to pass out! Any help would be greatly appreciated... Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2005 Report Share Posted April 20, 2005 I just get a website from another mom. www.sarahmoodyfoundation.org (sorry, I don't know how to link it!) I have not gotton a vest from them nor have I filled out the paperwork, but I can't wait to get one for my son. > > Hi- > I know I have seen some of you mention cooling vests for > overheating... I am looking for more info, where you get them, > pricing, etc. We are having an unseasonably warm day here in Boston > (close to 90 degrees!) and I noticed that Jack got overheated VERY > quickly. Overheating is a new thing for us... He is three and I'm > sure will want to try and keep up with his big brother this summer > outside. It is a little scary how fast he looked like he was going to > pass out! Any help would be greatly appreciated... > Thanks, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2005 Report Share Posted April 20, 2005 Hi, We got my daughter's vest at http://www.heatreliefdepot.com I really like her vest and it has worked well for us. Heat Relief Depot has all kinds of cooling products but we just have the vest. The cooling pack inserts are sort of like a wax. In ice water (frig or whatever is cool), they turn into a harder material. The vest lasts about 2 to 2 1/2 hours and then need to be recooled. This has not been an issue for us as we take along a small cooler and the cooling packs get cold again pretty quickly. This has been a real life saver for us and allows my daughter to be able to go outside (We live in Texas so it gets hot!). Oh, and when we got her vest, if you sent an e-mailing stating that you needed it for a medical condition, you got a percentage off the price. I think Holli's ended up costing just under $100 with the discount. Heidi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2005 Report Share Posted April 20, 2005 Grace gets hers from the Moody Foundation, but MDA pays for them. Moody will provide them for free if you are willing to go on a waiting list (odds are you will not get it this summer, if you are on the list.) You can also pay them directly for the vest, and I believe it is around three hundred dollars. The kit they send Grace includes a vest, extra packs, a cooling hat, wristbands, neck band, a cooling teddy bear, an insert for your pillow and if he needs it they can also get wheelchair seat pads. They just stopped using the manufacturer they had to make the vests, and now it is one woman and her sewing machine so I do cannot estimate how long it takes her. You can find more info about them at www.sarahmoodyfoundation.org. You will need a doctors note, justifying the need for the vest. Another place to check out for other cooling apperal is www.heatreliefdepot.com. Even though there website states they do childrens vests, they no longer do. This is the old manufacturer for Moody. They still use all the other products, but not the vests. (No bad feelings on the manufacturer, they only stopped making custom kids vests so they can devote time to making vests for the soldiers in the Middle East.) I believe others use a company called Texas Cool Vest, or something in that nature. I have no experience with this company though. If you need any more info, feel free to ask. Unfortunatly keeping Grace cool consumes much of my time, so I have become very knowlegable with this. Best wishes Download your favorite songs at MSN Music - Over 1 million songs for just 99¢ each Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2005 Report Share Posted April 20, 2005 Hi , I've been wondering how you all are doing - wow 90 degrees in Boston! That is truly amazing for April. I'm getting the cooling vest and other cooling equipment through the Moody Foundation. Just type in that name for a search and you should get connected to it. They provide the items free as long as you have a doctors orders. What did you end up doing about the nighttime breathing stuff? Anne R cooling vests? Hi- I know I have seen some of you mention cooling vests for overheating... I am looking for more info, where you get them, pricing, etc. We are having an unseasonably warm day here in Boston (close to 90 degrees!) and I noticed that Jack got overheated VERY quickly. Overheating is a new thing for us... He is three and I'm sure will want to try and keep up with his big brother this summer outside. It is a little scary how fast he looked like he was going to pass out! Any help would be greatly appreciated... Thanks, Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2005 Report Share Posted April 21, 2005 I just emailed Heat Relief Depot (www.heatreliefdepot.com) And they say they still do kids vests. Here's the response I received. Thank you for writing Heat Relief Depot/Biochem Corp. Yes we do make custom vests to fit children. The price is $129 which includes the vest and 2 sets of inserts....you will receive a 10% discount for medical reasons (no doctors note is necessary). If you wish to upgrade to the Indura Fabric it would be an additional $10. We recommend the Indura (which is flame resistant and more durable than the cotton fabric) for active children. Since this is a custom vest made to fit your child with lots of growing room.....it takes 4 to 6 weeks for delivery. We do not work with insurance companies...however, if it is an organization that wants to purchase this for you.....we will need a signed purchase order from them which can be faxed to . We need the following measurements: Chest, Waist, Height, Weight, Age, and top of middle of shoulder to waist. Shirley /Heat Relief Specialist I am going to call them and get ours ordered here in just a few minutes. Hope this helps some. I know without one we were going to be stuck inside all summer so I can't wait till it gets here. J Colo Mom to Will (9/7/2001) Seizures, Migraines, Ataxia, Dysphagia, Broncho/laryngeal/tracheal malacia, Asthma/Reactive Airway, Reflux (despite Nissen Fundoplication), Delayed gastric emptying, Chronic Constipation, Hypotonic Trunk, Hypertonic Extremities, Food allergies (unknown to what), PDD. Suspected Mito/Metabolic issue, 2 negative muscle biopsies, really weird labs, Heat Intolerance. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2005 Report Share Posted April 24, 2005 Thank you sarah for the info on the cooling vest. It was very helpful. I cant wait to get Tylers i hope it gives him alittle more freedom this summer! If it wasnt for this group i would never had known about this! Thank you everyone . Your children are in my thoughts and prayers! Keep smiling! wrote: I just emailed Heat Relief Depot (www.heatreliefdepot.com) And they say they still do kids vests. Here's the response I received.Thank you for writing Heat Relief Depot/Biochem Corp. Yes we do makecustom vests to fit children. The price is $129 which includes the vestand 2 sets of inserts....you will receive a 10% discount for medicalreasons (no doctors note is necessary). If you wish to upgrade to theIndura Fabric it would be an additional $10. We recommend the Indura(which is flame resistant and more durable than the cotton fabric) foractive children.Since this is a custom vest made to fit your child with lots of growingroom.....it takes 4 to 6 weeks for delivery.We do not work with insurance companies...however, if it is anorganization that wants to purchase this for you.....we will need asigned purchase order from them which can be faxed to . Weneed the following measurements: Chest, Waist, Height, Weight, Age, andtop of middle of shoulder to waist.Shirley /Heat Relief SpecialistI am going to call them and get ours ordered here in just a few minutes. Hope this helps some. I know without one we were going to be stuck inside all summer so I can't wait till it gets here. JColoMom to Will (9/7/2001) Seizures, Migraines, Ataxia, Dysphagia, Broncho/laryngeal/tracheal malacia, Asthma/Reactive Airway, Reflux (despite Nissen Fundoplication), Delayed gastric emptying, Chronic Constipation, Hypotonic Trunk, Hypertonic Extremities, Food allergies (unknown to what), PDD. Suspected Mito/Metabolic issue, 2 negative muscle biopsies, really weird labs, Heat Intolerance.Please contact mito-owner with any problems or questions. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2005 Report Share Posted April 25, 2005 Hi everyone, I spoke to the Moody foundation this am and they are not backordered for vests. In fact, we ordered my sons about 4 weeks ago and it's in the mail so we should get it soon! Anne R Re: cooling vests? I just get a website from another mom. www.sarahmoodyfoundation.org (sorry, I don't know how to link it!) I have not gotton a vest from them nor have I filled out the paperwork, but I can't wait to get one for my son. > > Hi- > I know I have seen some of you mention cooling vests for > overheating... I am looking for more info, where you get them, > pricing, etc. We are having an unseasonably warm day here in Boston > (close to 90 degrees!) and I noticed that Jack got overheated VERY > quickly. Overheating is a new thing for us... He is three and I'm > sure will want to try and keep up with his big brother this summer > outside. It is a little scary how fast he looked like he was going to > pass out! Any help would be greatly appreciated... > Thanks, > Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
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