Guest guest Posted April 20, 2005 Report Share Posted April 20, 2005 Hailee has blood in her bowel movements, and has been extremly tired... i know that there is so much going on im not sure what to do... have called peds waiting for a phone call.. we go tomorrow to see oncology to get her scan results... she is also having problems with walking... she will walk and than just freeze up and not be able to move her legs, and if we rest for a few she is ok for a little bit... any advice appreciated. , Mom to Hailee (6), diagnosed with septo optic dysplasia, mitocondrial disorder, epilipsy, 2brain disorders, neuroblastoma tumor, OMS,SID,ADHD,OCDAutism, and partial gtube feed.. Please visit her site at Http://www.caringbridge.org/az/hailee/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2005 Report Share Posted April 21, 2005 Can't offer advice, sorry. Just letting you know I have been praying for Hailee daily. Get the NEW version of MSN Messenger - it's FREE! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2005 Report Share Posted April 21, 2005 Sorry to hear more bad news. I don't know anything in this area but wanted to let you know you are in our thoughts and prayers. See www.caringbridge.org/ia/mitomomof9 and www.heartbeatsformito.org (a photo look into Mito) Darla: mommy to Asenath (5) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube, hypotonicity, disautonomia, SID, global delays, cyclic vomiting, bladder issues, some wheelchair use, eye issues, gastric emptying issues... Zipporrah (17 months) Mito, strokes, neuro-motor planning, SID, GERD, dysphasia, G-tube fed, speech delays, extreme fatigue, aberrant subclavian artery, disautonomia, hypertonicity, migraines, possible seizures, dumping syndrome, iron deficiency... Luke (17)migraines, sensory issues, & some evidence of SLE's... Leah (14), Rachael (13), Isaac (11), Tirzah (8), Kezia (4), Marquis (3) Joey (15 months) with hydrocephalus, dysgenesis of the corpus callosum, encephalomalacia & leukomalacia, G-tube, GERD, immobile, severe dev. delays, left hemiplegia (arm)... (15 months) SID, dev. delays, right hemiparesis issues... hailee/need advice > Hailee has blood in her bowel movements, and has been extremly tired... i > know that there is so much going on im not sure what to do... have called > peds > waiting for a phone call.. > > we go tomorrow to see oncology to get her scan results... she is also > having > problems with walking... she will walk and than just freeze up and not be > able > to move her legs, and if we rest for a few she is ok for a little bit... > > any advice appreciated. > > , Mom to Hailee (6), diagnosed with septo optic dysplasia, > mitocondrial disorder, epilipsy, 2brain disorders, neuroblastoma tumor, > OMS,SID,ADHD,OCDAutism, and partial gtube feed.. > > Please visit her site at > Http://www.caringbridge.org/az/hailee/ > > Quote Link to comment Share on other sites More sharing options...
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