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Hi Ann,

Generally we SLP's consider stuttering to be developmental up until about the age of 5 or so, but there is alot of wiggle room there. If he's not consistently getting "stuck" and it's generally only happening at the beginning of words, i wouldn't be worried yet. Does he work with an SLP yet (for other issues maybe)? If not, you might want to just do an initial evaluation to get a baseline of how much he's stuttering right now. Then given him another 6 months or so and check back in. I forget how old Asher is now....remind me please. The fact that it's been going on for awhile tells you that it's not just a transitional phase, so it may be worth your time now to get it checked out. Make sure your SLP has good stuttering experience....it is my weakest area of practice and i struggle everytime we have a stuttering kid come through my doors. Let me know if you need some direct pointers or if i can help at all.

hugs

ruth

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Hi again,

I know that stuttering can be a part of normal development. Or it can

simply be a stuttering in a non-mito kid, BUT I'm getting a bit freaked

out that Asher has started stuttering (it's been going on about 6-9

months) and is getting, IMHO, worse. It only happens at the beginning

of sentence. He gets particularly stuck on the first word which is

often " you " or " when " and he must say the first word like 10 times

before he can get the rest of the sentence out. I guess I'm freaked

that it might be a sign of mito in his brain (that has not been an

issue before). Anyone else with similar experiences?

Anne R

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we went through this and we were told it is absolutely normal between 4-7 and to go through this. its the mouth goes a lot faster than the brain (if you can believe that)! We were told if it doesn't improve at all in one to two years after it begins then it could be a problem. Also if it is only the first word in the sentence it is definitely developmental. the other thing we were told is if you can say "slow down and start again" and they can, then it is not a problem, only developmental. true stuttering a person cannot break at that age....

we went through this for pre-school and kindergarten, then it stopped by first grade. Trust me, he is fine now and hasn't shut his mouth since! and no more stuttering!!

Donna

stuttering question

Hi again,I know that stuttering can be a part of normal development. Or it can simply be a stuttering in a non-mito kid, BUT I'm getting a bit freaked out that Asher has started stuttering (it's been going on about 6-9 months) and is getting, IMHO, worse. It only happens at the beginning of sentence. He gets particularly stuck on the first word which is often "you" or "when" and he must say the first word like 10 times before he can get the rest of the sentence out. I guess I'm freaked that it might be a sign of mito in his brain (that has not been an issue before). Anyone else with similar experiences?Anne RPlease contact mito-owner with any problems or questions.

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My son has this- it is better now. His SLP says it is a word retrieval problem- not true stuttering.

I will be pushing for a trial of Namenda from one of his specialists when we see her this summer. Dr Chez in IL has had some success with it.

Cindy-GA

stuttering question

Hi again,I know that stuttering can be a part of normal development. Or it can simply be a stuttering in a non-mito kid, BUT I'm getting a bit freaked out that Asher has started stuttering (it's been going on about 6-9 months) and is getting, IMHO, worse. It only happens at the beginning of sentence. He gets particularly stuck on the first word which is often "you" or "when" and he must say the first word like 10 times before he can get the rest of the sentence out. I guess I'm freaked that it might be a sign of mito in his brain (that has not been an issue before). Anyone else with similar experiences?Anne R

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Our son who is not mito affected stutters...he sounds like he has a worse case than your little one. How old is he?

We were at the ENT today and they had something on their wall that said stuttering can be normal for any child age 2-6...so I guess its not highly unusual. Our little gal stuttered breifly while she was 2-3.

You might want to get a fluency eval...which is different from a speech eval. It wouldn't hurt. However, I wouldn't necessarily attribute it to mito at all. I am not saying it isn't mito related but most dysfluencies are not related to other problems.

deb...mom to four great kids and wife to one amazing guy!www.LifeofLoveProject.orgwww.debwells.com

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I'm so glad you brought this up. Since started having seizures he has had a terrible time with his speech. I didn't think of it as stuttering though I just thought it was because he was having a hard time putting the words in his brain out of his mouth. Some days are worse than others. However we haven't been diagnosed with mito yet either. The school has never said anything to me either about this, or his doctor's. If you find out anything please let me know. I'll keep you in my prayers.

AReckling@... wrote:

Hi again,I know that stuttering can be a part of normal development. Or it can simply be a stuttering in a non-mito kid, BUT I'm getting a bit freaked out that Asher has started stuttering (it's been going on about 6-9 months) and is getting, IMHO, worse. It only happens at the beginning of sentence. He gets particularly stuck on the first word which is often "you" or "when" and he must say the first word like 10 times before he can get the rest of the sentence out. I guess I'm freaked that it might be a sign of mito in his brain (that has not been an issue before). Anyone else with similar experiences?Anne RPlease contact mito-owner with any problems or questions. __________________________________________________

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