Guest guest Posted April 21, 2005 Report Share Posted April 21, 2005 does anyone know about the shaking that comes with some of this. brigittes head and hands shake really bad now. the dr has her on preidone 75mg.but it doesn't seem to help. the baclofen pump she has doesn't seem to be helping anymore . i'm affraid to tell the dr. it isn't helping cause they will increase the pump dose then she will lose more upper body tone any suggestions karen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2005 Report Share Posted April 21, 2005 shakes, but nothing to that extent... Have you tried weighted vests and wristbands? Its non medicinal, and probably like bailing out a sinking ship with a teaspoon, but might be worth a try, I know some people swear by them... hopefully someone else has more suggestions! > does anyone know about the shaking that comes with some of this. brigittes head and hands shake really bad now. the dr has her on preidone 75mg.but it doesn't seem to help. the baclofen pump she has doesn't seem to be helping anymore . i'm affraid to tell the dr. it isn't helping cause they will increase the pump dose then she will lose more upper body tone any suggestions > karen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2005 Report Share Posted April 21, 2005 Unfortunately I don't have any suggestions but wanted to let you know Asenath also deals with the hand tremors/shakes. I was told it is neurological and after that nothing. The docs don't feel it is an issue needing help. Some days it is much worse than others but thankfully it isn't so bad that she can't accomplish what she wants. See www.caringbridge.org/ia/mitomomof9 and www.heartbeatsformito.org (a photo look into Mito) Darla: mommy to Asenath (5) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube, hypotonicity, disautonomia, SID, global delays, cyclic vomiting, bladder issues, some wheelchair use, eye issues, gastric emptying issues... Zipporrah (17 months) Mito, strokes, neuro-motor planning, SID, GERD, dysphasia, G-tube fed, speech delays, extreme fatigue, aberrant subclavian artery, disautonomia, hypertonicity, migraines, possible seizures, dumping syndrome, iron deficiency... Luke (17)migraines, sensory issues, & some evidence of SLE's... Leah (14), Rachael (13), Isaac (11), Tirzah (8), Kezia (4), Marquis (3) Joey (15 months) with hydrocephalus, dysgenesis of the corpus callosum, encephalomalacia & leukomalacia, G-tube, GERD, immobile, severe dev. delays, left hemiplegia (arm)... (15 months) SID, dev. delays, right hemiparesis issues... shaking does anyone know about the shaking that comes with some of this. brigittes head and hands shake really bad now. the dr has her on preidone 75mg.but it doesn't seem to help. the baclofen pump she has doesn't seem to be helping anymore . i'm affraid to tell the dr. it isn't helping cause they will increase the pump dose then she will lose more upper body tone any suggestions karen Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.